Huntington's Disease Society of America
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A nonprofit organization is seeking a Chief Financial Officer to provide financial leadership and oversight, manage budgeting and compliance, and lead strategic planning. The ideal candidate has over 10 years of experience in financial management, including 5 years in a senior leadership role, preferably within the nonprofit sector. The position is remote and offers a competitive salary range of $175,000 to $200,000 with comprehensive benefits.
Title: Chief Financial Officer
Reports to: President & Chief Executive Officer
Direct Reports: Finance & Operations Team (Director of Finance, Finance Associate, additional 2 staff)
Location: Remote
Status: Exempt, full-time.
Salary: $175,000 - $200,000
To apply, please submit your resume and cover letter in PDF format to careers@hdsa.org with the subject line Application- Chief Financial Officer.
About HDSA:
The Huntington’s Disease Society of America (HDSA) is the premier nonprofit organization supporting the Huntington’s community. One powerful mission drives us: to improve the lives of everyone affected by Huntington’s disease. From community services and education to advocacy and research, HDSA is the world’s leader in providing help for today, hope for tomorrow for people with Huntington’s disease and their families. In the battle against Huntington’s disease no one fights alone.
As we stand on the cusp of a historic breakthrough, the first potential disease-modifying therapies for Huntington’s disease, HDSA is expanding to meet this moment with strength, vision, and compassion.
We are actively building a bold, forward-looking strategic plan to ensure our community is fully supported through the next chapter in research, access, and care.
We are looking for passionate, mission-aligned individuals who are committed to making a lasting impact. Our growing team is collaborative, purpose-driven, and deeply respectful of the families we serve. If you value honesty, integrity, meaningful work, and are excited to help shape the financial growth and future of HDSA looking to grow with us, we’d like to hear from you.
HDSA operates with an annual budget of approximately $12 million, supporting a robust portfolio of national programs. We steward a diversified funding base of philanthropic contributions, grants, corporate sponsorships, and events. In addition, we manage an investment and banking portfolio of $10 million designed to ensure long-term sustainability and strategic growth.
The Chief Financial Officer (CFO) will provide financial leadership and oversight for the HDSA.
The CFO is a key member of the senior leadership team and is responsible for all financial aspects of the organization, including strategic financial planning, accounting, budgeting, forecasting, treasury operations, and risk management. This role requires a professional who can manage and improve financial systems while upholding the highest standards of integrity and transparency.
As we prepare for potential disease-modifying therapies, the CFO will be instrumental in building the financial and operational infrastructure to support significant growth in research funding, patient services, and advocacy efforts and to ensure the appropriate deployment of the organization’s resources.
The new CFO will have the opportunity to lead the development of a long-term investment strategy in collaboration with the Investment Committee with an eye toward sustainable growth for the organization and its assets.
The CFO will also be in charge of helping to modernize the organizational infrastructure, alongside the Director of Operations, to optimize processes and create internal efficiencies.
Financial Strategy & Leadership:
Accounting & Operations:
Risk Management:
Required:
Preferred:
Personal Attributes:
We offer a mission-driven culture and highly supportive work environment. HDSA is an equal opportunity employer and committed to diversity. We’re proud to support our team with a comprehensive and generous benefits package that prioritizes well-being, security, and time to recharge:
Full Coverage Healthcare:
Protection & Peace of Mind:
Retirement Savings:
Paid Time Off + Company-wide breaks:
To apply, please submit your resume and cover letter in PDF format to careers@hdsa.org with the subject line Application- Chief Financial Officer.
* Le salaire de référence se base sur les salaires cibles des leaders du marché dans leurs secteurs correspondants. Il vise à servir de guide pour aider les membres Premium à évaluer les postes vacants et contribuer aux négociations salariales. Le salaire de référence n’est pas fourni directement par l’entreprise et peut pourrait être beaucoup plus élevé ou plus bas.