Neonatal Genetics Nurse

Frimley Health NHS Foundation Trust; England; On-site; GBP 60,000 - 80,000; Full time

Job summary

A prominent healthcare provider in the United Kingdom is seeking an experienced neonatal nurse to improve access to genetic services for families at risk of autosomal recessive genetic disorders. In this role, you will collaborate with the neonatal team to identify affected families, deliver accurate information, and ensure culturally competent support. The position requires a strong background in neonatology and excellent communication skills, allowing for empowered decision-making among families. Join us in our mission to provide high-quality care to our babies and their families.

Qualifications

• Experience working in a neonatal unit.
• Strong understanding of genetic disorders and their implications.
• Ability to communicate sensitively with families.

Responsibilities

• Identify families with potential genetic disorders.
• Provide culturally appropriate support and information.
• Develop and deliver training for staff on genetic literacy.

Skills

Culturally competent communication

Clinical skills in neonatal care

Training and presentation skills

Education

Nursing qualification with specialization in Neonatology

Job description

We have an exciting opportunity for an experienced neonatal nurse to join our trust in a brand new role. If you are passionate about reducing inequalities in infant and child mortality and morbidity this could be the role for you.

The Neonatal Unit at Wexham Park Hospital is a Level 2 Neonatal Unit made up of 2 Intensive Care, 3 High Dependency and 12 Special Care cots. The unit cares for babies over 26+6 weeks gestation and stabilises any baby under that gestation, to be transferred to a tertiary hospital/ NICU.

Our team aspires to provide high quality and evidence based; clinical, developmental and family integrated care in order to ensure the best outcomes for our babies and their families.

If a couple are consanguineous (closely related) their children have a higher chance of being affected by autosomal recessive genetic disorders.

Main duties of the job

This role aims to improve access to the provision of a culturally competent genetic service for consanguineous families at increased risk of autosomal recessive genetic disorders.

The post holder will work as a member of the neonatal team, to identify families where consanguineous related disorders are present and improve access to genetic services for families to enable informed reproductive decision-making.

Identify families that are admitted to NICU with a probable or likely genetic aetiology linked to close relative marriage and conditions likely to be inherited in an autosomal manner and initiate conversations with family in a sensitive, culturally appropriate manner.

• Ensure that families who need information about genetic risk and close relative marriage receive this support.
• Support other staff members to provide accurate, unbiased, non-judgemental evidence-based information to service users.
• Deliver a comprehensive training programme including access to genetic literacy information, to all staff, within neonatal services supporting the implementation of the national strategy.
• Maintain their own clinical skills and competencies and have excellent communication skills.
• Develop an understanding of the issues and research evidence of the subject matter.
• Ensure that provision of genetic information is available to women/families who are affected by this issue to enable empowered decision making.