Committee Member

DEBRA UK; Bracknell; Hybrid; GBP 80,000 - 100,000; Full time

Job summary

A charity focused on skin disorders is seeking committed individuals to join its Charitable Purposes Committee. Ideal candidates should have experience managing complex skin conditions and a strong interest in genetics. This is a voluntary position with meetings held quarterly, offering an opportunity to influence care strategy and engage with diverse issues affecting members. Training will be provided, and reasonable travel expenses will be reimbursed.

Benefits

Training provided

Reimbursed travel expenses

Opportunity to influence care strategy

Qualifications

• GMC registration as a dermatologist is preferred.
• Understanding of rare diseases and challenges faced by individuals.
• Ability to challenge and be a critical friend.

Responsibilities

• Review and advise on methodologies for care and research.
• Receive and discuss reports from medical experts.
• Determine yearly research expenditures.

Skills

Experience in managing complex skin conditions outside of EB

Interest or expertise in genetics and clinical applications

Innovative and collaborative mindset

Positive attitude

Job description

Overview

Charitable Purposes Committee Member

DEBRA is seeking members for its Charitable Purposes Committee to inform and develop the Charity’s evolving care and research strategy. Our Charitable Purposes Committee advises our Board of Trustees and is responsible for ensuring that the Charity’s resources are used effectively to support our provision of lifelong care and support for sufferers of the genetic skin disorder Epidermolysis Bullosa, and to support our investments in cutting edge research to find a cure for this debilitating condition.

It is an excellent time to join DEBRA’s Charitable Purposes Committee. There are exciting avenues opening up to us on the research side, and our Senior Leadership Team is keen to ambitiously develop our healthcare, support and membership services.

Responsibilities

• Review DEBRA UK’s Research & Care Strategy as it relates to research, health and community support and social policy on an ongoing basis.
• Receive and review reports from medical and scientific experts on current research activities.
• Determine, taking appropriate advice, the priorities for care and research expenditure each year.
• Oversee collaborative partnerships on care and research.
• Develop membership engagement, support and services.
• Review and develop healthcare initiatives to support member care.
• Receive reports on changes in national policy or practice within health and social care and agree appropriate responses from the Charity.

Time commitment

While DEBRA’s Head Office is based in Bracknell, Berkshire, our membership is spread across the UK. To be truly representative of that membership we encourage applicants from anywhere in the UK and committee members can access meetings virtually. We provide any training necessary to allow you to fulfil your committee duties. This is an unpaid volunteer role, but any reasonable travel expenses will be reimbursed in line with the Charity’s expenses policy.

Meetings of the Charitable Purposes Committee currently take place four times a year, each lasting between 2.5-3 hours. The term of appointment is three years.

Serving on DEBRA’s Committees is a pre-requisite to joining our Board and successful applicants would be welcome to apply to be a Trustee after a year of service on the Charitable Purposes Committee.

Diversity

DEBRA is aware that studies have shown that women, people of colour and those living with a disability are less likely to apply for roles unless they believe they meet every single one of the qualifications as described in a job role. The charity is committed to building a diverse and inclusive environment and therefore welcomes applications from everyone regardless of age, gender, ethnicity, sexual orientation, faith or disability. The charity aspires to maintain a representative and diverse Board including women, individuals from ethnic and LGBTQIA communities and those living with disability. Applications from these communities would be welcomed, even in the case that you do not believe you meet every one of the requirements of the role described.

Selection criteria

We’re looking to recruit people from a wide range of experiences and backgrounds. If you believe you have skills developed from your professional life combined with the proactivity, commitment and drive to make a difference and bring a new perspective we would love to hear from you.

We particularly welcome applications from GMC-registered dermatologists with experience in managing complex skin conditions outside of EB. Ideal candidates will bring a strong interest or proven expertise in genetics and/or genomics and clinical applications within dermatology. An understanding of rare diseases and the unique challenges faced by affected individuals and their clinicians is highly valued.

Essential & Desirable Skills

Essential Skills: Experience in managing complex skin conditions outside of EB. Ideal candidates will bring a strong interest or proven expertise in genetics and/or genomics and clinical applications within dermatology. Ability to challenge and to be a critical friend where necessary. Innovative and collaborative mindset. “Can do” and positive attitude.

Desirable Skills: Experience of chronic skin conditions.

How to apply

If you think you can help steer DEBRA as we journey forward, please send your CV and a supporting statement answering these three questions via the email application box below.

1. Why do you want to become a DEBRA Committee member?
2. What skills do you believe you can bring to the committee?
3. What experience will you bring to the committee?

You can send this submission as a written statement, a video or aural submission.

DEBRA is committed to being an inclusive charity, and we welcome and encourage applications from all sections of the community.

The successful candidate will need to undertake a DBS check and sign a Non-Disclosure agreement.

Appointment details
Term: Three years

The information in this description is subject to change. Appointment of a Committee member is at the discretion of the Charity.