Remote Participant Engagement & Retention Manager

MDA; United States; Remote; USD 65,000 - 67,000; Full time

Benefits offered by this job

Medical Insurance

Dental & Vision

HSA with match

Paid sick leave

EAP

Life insurance

401(k) with match

Generous PTO

Paid holidays

Remote work

Professional development

Job summary

MDA is seeking a Manager, Participant Engagement and Retention for the MOVR Registry. This remote role guides participants from first contact through enrollment, consent, data sharing and ongoing participation, coordinating with Marketing, Family Care and Services and the Director of Clinical Operations.

You will establish a help desk, track enrollment milestones, respond to inquiries, reduce discontinuation at key steps, and contribute to plain-language materials on privacy and records sharing.

Qualifications

• Bachelor's degree or equivalent experience.
• 4+ years supporting individuals through a multi-step process — patient or participant engagement, clinical research coordination, case management, member services, or comparable direct-service work.
• Demonstrated ability to write for a general audience in plain language, particularly on complex or sensitive subjects.
• Sound judgment handling confidential health information and working familiarity with HIPAA.

Responsibilities

• Establish and manage the participant help desk, including intake, response-time targets, case tracking, and escalation of participant inquiries, enrollment questions, and electronic health record authorization issues.
• Develop and conduct outreach tailored to each stage of enrollment, including follow-up with participants who have not completed consent or authorized access to all relevant medical records.
• Manage onboarding communications, re-consent campaigns, and a retention calendar to support ongoing participation in the registry.
• Partner with Marketing and Communications and Family Care and Services to develop plain-language materials explaining data privacy, medical record sharing, and automated record retrieval.
• Document and analyze participant inquiries and barriers, and use findings to recommend improvements to consent language, enrollment workflows, and the medical record authorization process.

Skills

Written communication

HIPAA familiarity

Empathy and patient-centered support

Education

Bachelor's degree

Tools

CRM system

Job description

MDA is seeking a Manager, Participant Engagement and Retention for the MOVR Registry. This remote role guides participants from first contact through enrollment, consent, data sharing and ongoing participation, coordinating with Marketing, Family Care and Services and the Director of Clinical Operations.

You will establish a help desk, track enrollment milestones, respond to inquiries, reduce discontinuation at key steps, and contribute to plain-language materials on privacy and records sharing.