Director, Registry Data Ops & Partner Engagement

Muscular Dystrophy Association, Inc.; Chicago (IL); Remote; USD 100,000 - 110,000; Full time

Benefits offered by this job

Medical, Dental and Vision insurance

Health Savings Account with company-m算

Job summary

Muscular Dystrophy Association, Inc. (MDA) seeks a Director of MOVR Data Operations and Partner Delivery to drive data operations for the MOVR real-world data program.

You will manage partnerships with biopharmaceutical and technology partners, coordinate delivery with researchers, and oversee data quality, governance, and platform requirements. In this remote role, you will translate program priorities into actionable plans, write data pipelines in Python/SQL, and ensure timely, compliant

Qualifications

• Experience in health data, clinical research, or real-world data programs.
• Ability to learn unfamiliar regulatory domains quickly and apply sound judgment.
• Experience managing external vendors/technology partners and project timelines.

Responsibilities

• Manage biopharmaceutical and technology partner deliverables, timelines, and statements of work.
• Track deliverables, identify scope changes and risks, and escalate issues promptly.
• Scope new partner projects and translate commitments into delivery plans and timelines.
• Prepare partner-facing status updates and deliverable reports.
• Serve as primary day-to-day contact for the technology platform partner and coordinate with internal teams.
• Coordinate data access and delivery with researchers and patient advocacy partners while respecting consent and governance requirements.

Skills

Descriptive analyses

Vendor management

Project management

Data privacy & governance

Cross-functional collaboration

Scientific communication

Education

Bachelor’s degree in engineering, data science, health informatics, life sciences, public health, or a related field

Tools

R

Python

SQL

SAS

Job description

Muscular Dystrophy Association, Inc. (MDA) seeks a Director of MOVR Data Operations and Partner Delivery to drive data operations for the MOVR real-world data program.

You will manage partnerships with biopharmaceutical and technology partners, coordinate delivery with researchers, and oversee data quality, governance, and platform requirements. In this remote role, you will translate program priorities into actionable plans, write data pipelines in Python/SQL, and ensure timely, compliant