Director, MOVR Registry Data & Partner Delivery

MDA; United States; À distance; USD 100 000 - 110 000; Plein temps

Avantages offerts par ce poste

Medical, Dental, Vision insurance

Remote work opportunities

Flexible hours

Paid time off

Résumé du poste

MDA is seeking a Director of Registry Data Operations and Partner Delivery to lead MOVR data operations and oversee biopharmaceutical and technology partnerships. You will manage cross-functional teams, coordinate data governance, and drive alignment between clinical research, data platforms, and regulatory requirements.

You will translate program priorities into actionable delivery plans, monitor milestones, and ensure data quality and participant consent compliance across complex vendor

Qualifications

• Bachelor’s degree in engineering, data science, health informatics, life sciences, public health, or a related field.
• Five or more years of experience in health data, clinical research, digital health, or real-world data, including responsibility for a workstream.
• Experience managing external vendors or technology partners against contractual deliverables, including escalation of issues.
• Experience managing technical projects to committed timelines, including dependencies.
• Experience working with patient-level health data from registries, EMRs, clinical research, or real-world data programs.

Responsabilités

• Manage MDA’s operational commitments under biopharmaceutical and technology partner agreements, including deliverables, timelines, and statements of work.
• Track contractual deliverables, identify scope changes and potential delivery risks, and escalate issues promptly.
• Support the Vice President in scoping new partner projects and translating agreed commitments into delivery plans and timelines.
• Prepare and maintain partner-facing status updates and deliverable reports.
• Serve as the primary day-to-day contact for the technology platform partner and represent MDA in operational discussions as delegated by the Vice President.
• Manage collaborations with researchers and other patient advocacy organizations to facilitate the use of MOVR data for research, clinical care, and therapeutic development, including coordinating project scope, data access, and deliverables in accordance with participant consent and MDA’s data governance requirements.
• Monitor platform partner deliverables, service levels, and scope against the contract and statement of work.
• Coordinate recurring partner delivery meetings and maintain status reports and issue, risk, and action logs.
• Direct the rollout of new data domains, surveys, and disease-specific modules with the platform partner and internal teams.
• Manage MOVR technical project plans, including scope, sequencing, dependencies, critical paths, and committed delivery dates.
• Translate program needs into actionable platform requirements and verify that completed work meets those requirements.
• Maintain the risk and issue register, coordinate resolution, and monitor actions through closure.
• Maintain decision records across partner, vendor, and governance meetings, including documented outcomes, rationale, commitments, action owners, and follow-up.
• Keep project plans, timelines, dependencies, and unresolved decisions current and visible to leadership.
• Organize and facilitate MOVR clinical, data integration, and disease-specific working groups, including agendas, documented recommendations, and follow-through.
• Maintain the data model and data dictionary as controlled documents with versioning and change control, supporting scientific review and approval by the Vice President or designated governance lead.
• Develop and maintain registry standard operating procedures (SOPs) and workflows.
• Support Institutional Review Board (IRB) operational activities and applicable privacy and compliance requirements.
• Review partner requests, data releases, and new data collection against participant consent; identify and escalate requests that exceed consent before commitments are made.
• Establish and oversee data quality review standards for completeness, consistency, and fitness for intended use.
• Coordinate data quality remediation with the platform partner and verify that corrective actions are completed.
• Communicate data limitations and gaps transparently to leadership and partners.

Connaissances

Vendor management

Project management

Clinical data

Regulatory knowledge

Data analysis

Formation

Bachelor’s degree

Master’s degree

PhD

Description du poste

MDA is seeking a Director of Registry Data Operations and Partner Delivery to lead MOVR data operations and oversee biopharmaceutical and technology partnerships. You will manage cross-functional teams, coordinate data governance, and drive alignment between clinical research, data platforms, and regulatory requirements.

You will translate program priorities into actionable delivery plans, monitor milestones, and ensure data quality and participant consent compliance across complex vendor