PKU & Rare Disease Patient Engagement Liaison

PTC Therapeutics, Inc; Cincinnati (OH); On-site; USD 120,000 - 140,000; Full time

Job summary

PTC Therapeutics, Inc. is seeking a Patient Engagement Liaison to support rare disease communities, primarily PKU, in the field across the United States.

You will connect with patients, caregivers, and advocacy organizations to understand needs and improve access to therapies. The role requires collaboration with medical, communications, commercial, legal and compliance teams, strong communication skills, and willingness to travel up to 75% domestically.

Qualifications

• Bachelor's degree.
• 5 years of experience in pharmaceutical/biotechnology or related field.
• Experience supporting people with rare diseases, their caregivers and advocacy organizations.

Responsibilities

• Engages with the rare disease community, including patient advocacy organizations, to better understand the rare experience and incorporate those insights throughout PTC.
• Collaborate internally with other PTC teams to help identify, educate, build, and leverage relationships with those living with rare diseases, their caregivers, and Patient Advocacy Organizations.
• If appropriate, assist the community with resources to help remove access barriers to help gain coverage for marketed products.
• Build patient advocacy and community relationships for currently marketed product disease states and those in development, consistent with applicable regulations.
• Works cross functionally with medical, communications, commercial, legal and compliance colleagues to ensure country specific guidelines, standards and regulations are followed.
• Connect families to Patient Advocacy Organizations and resources.
• Develop, plan and execute educational programs for those living with rare diseases and their caregivers.
• Supports Patient Advocacy Organizations through shared interests in education and programs
• Work with the rare disease community to advocate for access to care and therapies.

Skills

Empathy

Healthcare knowledge

Compliance

Cross-functional leadership

Relationship building

Microsoft Office

Verbal communication

Written communication

Presentation skills

Independent working

Analytical thinking

Planning and time management

CRM data entry

Education

Bachelor's degree

5 years experience in pharma/biotech/advocacy

Experience supporting rare diseases, caregivers and advocacy organizations

Tools

Zoom

CRM system

Job description

PTC Therapeutics, Inc. is seeking a Patient Engagement Liaison to support rare disease communities, primarily PKU, in the field across the United States.

You will connect with patients, caregivers, and advocacy organizations to understand needs and improve access to therapies. The role requires collaboration with medical, communications, commercial, legal and compliance teams, strong communication skills, and willingness to travel up to 75% domestically.