Field-Based Rare Disease Patient Engagement Lead

PTC Therapeutics, Inc.; Philadelphia (Philadelphia County); On-site; USD 120,000 - 140,000; Full time

Job summary

PTC Therapeutics, Inc. is seeking a Field-based Patient Engagement Liaison to support individuals with rare diseases, their caregivers, and advocacy organizations. This role centers on the PKU community and may include other therapeutic areas of interest to PTC.

You will collaborate across medical, communications, and commercial teams to understand patient needs, remove access barriers, and build strong patient advocacy relationships. Extensive travel and in-person engagement are expected.

Qualifications

• Bachelor’s degree in a related field.
• 5 years of experience in pharmaceutical, biotechnology, advocacy, medical, or related field.
• Experience supporting people with rare diseases, their caregivers and advocacy organizations.

Responsibilities

• Engages with the rare disease community, including patient advocacy organizations, to better understand the rare experience and incorporate those insights throughout PTC.
• Collaborate internally with other PTC teams to help identify, educate, build, and leverage relationships with those living with rare diseases, their caregivers, and Patient Advocacy Organizations.
• If appropriate, assist the community with resources to help remove access barriers to help gain coverage for marketed products.
• Build patient advocacy and community relationships for currently marketed product disease states and those in development, consistent with applicable regulations.
• Works cross functionally with medical, communications, commercial, legal and compliance colleagues to ensure country specific guidelines, standards and regulations are followed.
• Connect families to Patient Advocacy Organizations and resources.
• Develop, plan and execute educational programs for those living with rare diseases and their caregivers.
• Supports Patient Advocacy Organizations through shared interests in education and programs
• Work with the rare disease community to advocate for access to care and therapies

Skills

Empathy

Healthcare knowledge

Communication

CRM

Data entry

Education

Bachelor’s degree

Job description

PTC Therapeutics, Inc. is seeking a Field-based Patient Engagement Liaison to support individuals with rare diseases, their caregivers, and advocacy organizations. This role centers on the PKU community and may include other therapeutic areas of interest to PTC.

You will collaborate across medical, communications, and commercial teams to understand patient needs, remove access barriers, and build strong patient advocacy relationships. Extensive travel and in-person engagement are expected.