Rare Disease Patient Engagement Lead

PTC Therapeutics, Inc; Milwaukee (WI); Sur place; USD 120 000 - 140 000; Plein temps

Avantages offerts par ce poste

Flexibility to travel

Résumé du poste

PTC Therapeutics, Inc is seeking a Field-based Patient Engagement Liaison to support patients with rare diseases, primarily PKU, and their caregivers. You will collaborate with internal teams to remove access barriers and develop patient advocacy programs, while maintaining regulatory compliance.

The role requires a Bachelor’s degree and 5 years in pharma or related fields, with up to 75% travel and strong communication skills. Base salary ranges from $120,000 to $140,000 plus incentives.

Qualifications

• Bachelor's degree required with 5+ years in pharma, biotech, advocacy, medical, or related field.
• Experience supporting people with rare diseases, their caregivers, and advocacy organizations.
• Ability to travel up to 75% domestically; valid driver's license.

Responsabilités

• Engage with rare disease community and patient advocacy organizations to capture insights.
• Collaborate with internal teams to build relationships with patients and caregivers.
• Assist access resources to help gain coverage for marketed products as appropriate.
• Develop and execute educational programs for patients and families.
• Work cross-functionally with medical, communications, commercial, legal and compliance teams.
• Enter and manage data confidentially in CRM.

Connaissances

Empathy & compassion

Healthcare industry knowledge

Cross-functional leadership

Relationship building

Verbal & written communication

Independent & collaborative work

Analytical thinking

Time management

CRM data entry

Proficiency in Microsoft Office & Zoom

Formation

Bachelor's degree

Related clinical or scientific discipline preferred

Outils

CRM software

Microsoft Office

Zoom

Description du poste

PTC Therapeutics, Inc is seeking a Field-based Patient Engagement Liaison to support patients with rare diseases, primarily PKU, and their caregivers. You will collaborate with internal teams to remove access barriers and develop patient advocacy programs, while maintaining regulatory compliance.

The role requires a Bachelor’s degree and 5 years in pharma or related fields, with up to 75% travel and strong communication skills. Base salary ranges from $120,000 to $140,000 plus incentives.