Field-Based Rare Disease Patient Engagement Partner

PTC Therapeutics, Inc.; Virginia (MN); On-site; USD 120,000 - 140,000; Full time

Job summary

PTC Therapeutics, Inc. is seeking a Field-based Patient Engagement Liaison to support rare disease communities, focusing on PKU.

You will engage with patient advocacy groups, educate communities, and collaborate with medical, commercial and legal teams to remove access barriers. The role emphasizes building relationships, travel up to 75%, and adherence to regulatory guidelines while helping families access therapies.

Qualifications

• Bachelor’s degree required.
• 5 years of experience in pharmaceutical, biotechnology, advocacy, medical, or related field.
• Experience supporting people with rare diseases, their caregivers and advocacy organizations.

Responsibilities

• Engages with the rare disease community, including patient advocacy organizations, to understand the rare experience and incorporate insights.
• Collaborate internally with other PTC teams to identify, educate, build, and leverage relationships with those living with rare diseases, their caregivers, and Patient Advocacy Organizations.
• Assist the community with resources to help remove access barriers to help gain coverage for marketed products.
• Build patient advocacy and community relationships for currently marketed product disease states and those in development, in line with regulations.
• Work cross functionally with medical, communications, commercial, legal and compliance colleagues to ensure country-specific guidelines are followed.
• Connect families to Patient Advocacy Organizations and resources.
• Develop, plan and execute educational programs for those living with rare diseases and their caregivers.
• Support Patient Advocacy Organizations through shared interests in education and programs
• Work with the rare disease community to advocate for access to care and therapies

Skills

Empathy

Healthcare knowledge

Confidentiality

Cross-functional leadership

Relationship building

Microsoft Office

Zoom

Verbal communication

Written communication

Presentation skills

Independent work

Team collaboration

Analytical thinking

Critical thinking

Time management

CRM data entry

Education

Bachelor’s degree

Tools

Microsoft Office

Zoom

CRM

Job description

PTC Therapeutics, Inc. is seeking a Field-based Patient Engagement Liaison to support rare disease communities, focusing on PKU.

You will engage with patient advocacy groups, educate communities, and collaborate with medical, commercial and legal teams to remove access barriers. The role emphasizes building relationships, travel up to 75%, and adherence to regulatory guidelines while helping families access therapies.