Gene Therapy Patient Navigator - Remote RN

CSL; North Carolina; Remote; USD 90,000 - 120,000; Full time

Job summary

CSL Behring is seeking a Nurse Resource Navigator to provide comprehensive, personalized support and education on gene therapy across the patient journey. You will educate patients, HCPs, and communities, and coordinate with field teams to expand access and understanding of CSL Behring gene therapy offerings.

The role covers the East Coast region and requires BSN and 3–5 years' hemophilia care experience, with up to ~50% travel.

Qualifications

• BSN required.
• Minimum 3–5 years of experience in a hemophilia treatment center, patient-focused role, or healthcare system.
• Experience educating patients, families, healthcare professionals, and community groups about rare diseases.
• Ability to translate complex scientific information into patient-friendly language.
• Willingness to travel up to ~50%, including evenings and weekends.
• Strong organizational skills and ability to manage multiple priorities in a field-based role.
• Bi-lingual a plus.
• Experience with Microsoft Office; SAP experience preferred.

Responsibilities

• Lead regional efforts to support services education to patients, families/caregivers, healthcare professionals, nursing organizations, advocacy groups.
• Serve as a familiar point of contact for patients throughout their gene therapy journey.
• Respond to patient inquiries to promote transparency and understanding of gene therapy.
• Provide in-depth education to patients about gene therapy.
• Escalate clinical or medical inquiries to appropriate teams to ensure accurate and compliant responses.
• Document all interactions in CRM systems to track activity, outcomes, and metrics.
• Educate patients/caregivers on CSL hemophilia products and services via telephone, live/virtual meetings, and education programs.
• Be a subject matter expert on CSL Behring programs and services for patients in the bleeding disorders community.
• Collaborate with field and internal teams to increase disease-state awareness and patient access.
• Provide coaching and timely guidance with field teams for coordinated patient experiences.
• Offer feedback on workplans and propose innovative service offerings.
• Influence across Sales, FRMs, Medical, Market Access.
• Foster relationships with CSL Behring and key stakeholders.
• Report key insights from the patient community.
• Lead development of innovative patient support solutions for gene therapy adoption.
• Own KPIs for the educational function.
• Ensure full compliance with policies and guidelines and SOPs.
• Serve as a thought leader in patient engagement for rare disease/gene therapy.

Skills

Bi-lingual

Travel up to 50%

Strong communication

Microsoft Office

Education

BSN - Bachelor’s Degree in Nursing

Tools

Microsoft Office

SAP

Job description

CSL Behring is seeking a Nurse Resource Navigator to provide comprehensive, personalized support and education on gene therapy across the patient journey. You will educate patients, HCPs, and communities, and coordinate with field teams to expand access and understanding of CSL Behring gene therapy offerings.

The role covers the East Coast region and requires BSN and 3–5 years' hemophilia care experience, with up to ~50% travel.