Gene Therapy Patient Navigator - RN (Remote East Coast)

CSL; Boston (MA); Remote; USD 90,000 - 120,000; Full time

Job summary

CSL Behring is seeking a Nurse Resource Navigator to provide personalized education and support for the Hemophilia B community on gene therapy. The role involves guiding patients, families, and healthcare professionals through the treatment journey and acting as a trusted contact for inquiries.

The position leads regional education efforts, collaborates with field and internal teams, documents interactions in CRM, and ensures compliant communication.

Qualifications

• Minimum 3-5 years of experience in a hemophilia treatment center, patient-related organization or health care system.
• Experience educating patients, families, healthcare professionals, office staff, nursing organizations, and community groups affected by rare and ultra-rare genetic diseases (required).
• Ability to translate complex scientific and medical information into patient-friendly language.
• Ability to travel-~50% including evenings and weekends for advocacy events.
• Strong organizational skills with ability to manage multiple priorities in a field-based role.
• Bi-lingual a plus.
• Experience with the Bleeding Disorders Community strongly preferred.
• Proficiency with Microsoft Office; SAP experience preferred.

Responsibilities

• Partner with regional, field-based, and internal colleagues to identify barriers to patient access and help address them.
• Advise and be a familiar point of contact for patients throughout their gene therapy journey.
• Respond and anticipate patient inquiries to promote transparency and foster understanding of gene therapy.
• Provide in-depth education to patients who are interested in learning more about gene therapy.
• Escalate clinical or medical inquiries to appropriate teams to ensure accurate and compliant responses.
• Document all interactions in CRM systems and complete required entries to track activity and outcomes.
• Educate patients/caregivers on CSL hemophilia products and services to promote a balanced understanding of options.
• Act as subject matter expert on all programs and services CSL Behring provides to patients within the bleeding disorders community.
• Collaborate with field and internal colleagues to increase disease-state awareness and support patient access.
• Provide coaching and timely guidance and work with field teams to ensure coordinated patient experiences.
• Offer feedback on existing workplans and propose innovative service offerings to improve patient engagement.
• Influence across Sales, FRMs, Medical, Market Access.
• Foster positive relationships between CSL Behring and key stakeholders.
• Report key insights from patient community and lead development of innovative patient support solutions for gene therapy adoption.
• Own KPIs essential to delivering the role’s educational function.
• Ensure full compliance with corporate policies, regulatory guidelines, and industry standards.

Skills

Patient education

Communication

Travel readiness

Bi-lingual

Education

Bachelor's degree in Nursing (BSN)

Tools

Microsoft Office

SAP

Job description

CSL Behring is seeking a Nurse Resource Navigator to provide personalized education and support for the Hemophilia B community on gene therapy. The role involves guiding patients, families, and healthcare professionals through the treatment journey and acting as a trusted contact for inquiries.

The position leads regional education efforts, collaborates with field and internal teams, documents interactions in CRM, and ensures compliant communication.