Gene Therapy Nurse Navigator (Remote, East Coast)

CSL; Milton (MA); Remote; USD 90,000 - 130,000; Full time

Job summary

CSL Behring is seeking a Nurse Resource Navigator to provide comprehensive education and personalized support for the Hemophilia B community, guiding patients through the gene therapy journey. You will educate patients, healthcare professionals, and community members, serving as a trusted point of contact and coordinating with a regional team to address access barriers and inform stakeholders.

The role emphasizes patient education on CSL Behring products, regulatory compliance, and delivering

Qualifications

• Bachelor’s degree in Nursing (BSN) is required.
• Minimum 3-5 years of experience in a hemophilia treatment center, patient-related organization or health care system.
• Experience educating patients, families, healthcare professionals, office staff, nursing organizations, and community groups affected by rare diseases.
• Ability to translate complex scientific and medical information into patient-friendly language.
• Ability to travel ~50% including evenings and weekends for advocacy events.
• Strong organizational skills with ability to manage multiple priorities in a field-based role.
• Bi-lingual a plus.
• Experience with the Bleeding Disorders Community strongly preferred.
• Proficiency with Microsoft Office; SAP experience preferred.

Responsibilities

• Partner with regional, field-based, and internal colleagues to identify barriers to patient access and help address them.
• Serve as a familiar point of contact for patients throughout their gene therapy journey
• Respond to patient inquiries to promote transparency and foster understanding of gene therapy
• Provide in-depth education to patients interested in learning about gene therapy
• Escalate clinical inquiries to appropriate teams for accurate responses
• Document interactions in CRM systems to track activity and outcomes
• Educate patients on CSL hemophilia products and services via calls, live/virtual meetings, and education programs
• Act as a subject matter expert on CSL Behring programs for patients in bleeding disorders
• Collaborate with field and internal teams to raise disease-state awareness and support patient access
• Provide coaching and timely guidance to field teams for coordinated support
• Offer feedback on workplans and propose innovative patient engagement options
• Influence across Sales, FRMs, Medical, Market Access
• Foster relationships with CSL Behring stakeholders
• Report insights from patient community
• Lead development of patient support solutions for gene therapy adoption
• Own KPIs for educational outputs
• Ensure compliance with policies and regulatory guidelines

Skills

Communication

Travel readiness

Bi-lingual

Organization

Education outreach

Patient education

Education

BSN

Tools

SAP

Microsoft Office

Job description

CSL Behring is seeking a Nurse Resource Navigator to provide comprehensive education and personalized support for the Hemophilia B community, guiding patients through the gene therapy journey. You will educate patients, healthcare professionals, and community members, serving as a trusted point of contact and coordinating with a regional team to address access barriers and inform stakeholders.

The role emphasizes patient education on CSL Behring products, regulatory compliance, and delivering