Field-Based Rare Disease Patient Advocate

PTC Therapeutics, Inc; Philadelphia (Philadelphia County); On-site; USD 120,000 - 140,000; Full time

Job summary

PTC Therapeutics, Inc. is seeking a Field-based Patient Engagement Liaison to support rare disease communities, primarily PKU, and their caregivers. You will work cross-functionally to educate, build relationships, and remove access barriers to therapies.

Expect up to 75% domestic travel; strong communication and collaboration skills are essential. Bachelor’s degree and 5+ years in pharma/advocacy are required.

Qualifications

• Bachelor's degree required.
• At least 5 years of experience in pharmaceutical, biotechnology, advocacy, medical, or related field.
• Experience supporting people with rare diseases, their caregivers and advocacy organizations.

Responsibilities

• Engages with the rare disease community, including patient advocacy organizations.
• Collaborate internally with other PTC teams to build and leverage relationships with those living with rare diseases and their caregivers.
• Assist the community with resources to help remove access barriers to coverage for marketed products.
• Build patient advocacy and community relationships for current and development-stage products.
• Work cross-functionally with medical, communications, commercial, legal and compliance to follow country guidelines.
• Connect families to Patient Advocacy Organizations and resources.
• Develop, plan and execute educational programs for those living with rare diseases and their caregivers.
• Support Patient Advocacy Organizations through shared education programs and resources.
• Work with the rare disease community to advocate for access to care and therapies.

Skills

Empathy

Healthcare knowledge

Compliance

Cross-functional leadership

Relationship building

MS Office & Zoom

Verbal & written communication

Independent & collaborative work

Analytical thinking

Time management

CRM data entry

Education

Bachelor's degree

Tools

CRM system

Job description

PTC Therapeutics, Inc. is seeking a Field-based Patient Engagement Liaison to support rare disease communities, primarily PKU, and their caregivers. You will work cross-functionally to educate, build relationships, and remove access barriers to therapies.

Expect up to 75% domestic travel; strong communication and collaboration skills are essential. Bachelor’s degree and 5+ years in pharma/advocacy are required.