Field-Based Rare Disease Engagement Liaison

PTC Therapeutics, Inc; Virginia (MN); On-site; USD 120,000 - 140,000; Full time

Benefits offered by this job

Short-term incentives

Long-term incentives

Medical coverage

Retirement plan

Job summary

PTC Therapeutics, Inc is seeking a Patient Engagement Liaison to work field-based with rare disease communities, primarily PKU, to support patients, caregivers, and advocacy organizations. You will partner with internal teams to educate and build relationships, help remove access barriers to therapies, and develop educational programs across a global portfolio.

The role requires cross-functional collaboration, strong communication, and the ability to travel up to 75% domestically.

Qualifications

• Bachelor's degree required.
• 5 years of experience in pharmaceutical, biotechnology, advocacy, medical, or related field.
• Experience supporting people with rare diseases, their caregivers and advocacy organizations.
• Proven ability to build and maintain relationships across internal and external stakeholders.
• Experience navigating healthcare systems and patient access environments.
• Strong compliance awareness and ability to maintain confidentiality.

Responsibilities

• Engages with the rare disease community, including patient advocacy organizations, to deepen understanding and share insights with PTC.
• Collaborate with internal teams to identify and educate relationships with those living with rare diseases and patient advocacy groups.
• Assist the community with resources to help remove access barriers to coverage for marketed products.
• Build patient advocacy and community relationships for marketed products and those in development.
• Work cross-functionally with medical, communications, commercial, legal and compliance teams to ensure country-specific guidelines are followed.
• Connect families to Patient Advocacy Organizations and resources.
• Develop and implement educational programs for patients and caregivers.

Skills

Empathy

Healthcare knowledge

Cross-functional leadership

Relationship building

Communicate effectively

CRM data entry

Microsoft Office

Zoom

Education

Bachelor's degree

Degree in clinical/scientific discipline

Tools

CRM

Microsoft Office

Zoom

Job description

PTC Therapeutics, Inc is seeking a Patient Engagement Liaison to work field-based with rare disease communities, primarily PKU, to support patients, caregivers, and advocacy organizations. You will partner with internal teams to educate and build relationships, help remove access barriers to therapies, and develop educational programs across a global portfolio.

The role requires cross-functional collaboration, strong communication, and the ability to travel up to 75% domestically.