Rare Disease Patient Education Leader

Alexion; Phoenix (AZ); On-site; USD 135,000 - 203,000; Full time

Benefits offered by this job

Health insurance

Dental coverage

Vision coverage

Retirement plan

Paid time off

Job summary

Alexion is seeking a NF1 PN and HPP Patient Education Manager (PEM) to engage with patients and families across a broad geography, delivering education and support through one-to-one meetings, events, and partner programs.

You will collaborate with the Patient Advocacy team and RAMS, build a regional engagement plan, and coordinate with Compliance, Legal, Marketing, and Medical to deliver compliant, scalable education while driving awareness of NF1 and HPP and connecting patients to resources.

Qualifications

• Minimum of 4 years business experience in the healthcare industry.
• Experience engaging with patients and caregivers with rare/chronic conditions.
• Empathy for others with proven ability to listen well, connect meaningfully, and present complex information in a clear and engaging manner during 1:1 meetings.
• High initiative, solid work ethic, and consistent accountability.
• Ability to adapt quickly and commitment to react positively to frequent change in a high-energy, fast paced environment.
• Excellent presentation skills to diverse stakeholders in varied settings that will include groups of 150+ people.
• Strong organizational capabilities that will facilitate strategic and efficient territory management over a large geography.
• Ability to travel 60-80% of time, including evenings and weekends. Potential territory AZ, UT, OR, WA, ID, WY, MT, ND and SD.
• Valid driver's license and clean driving record.
• BA/BS degree required, advanced degree a plus

Responsibilities

• Developing, in close partnership with Alexion Patient Advocacy and NF1PN and HPP brand marketing, a regional patient engagement plan that strategically supports commercial priorities
• Coordinating frequently with key cross functional partners to execute local patient outreach compliantly and effectively
• Educating patients, caregivers and families via 1:1 meetings, including face-to-face interactions, about NF1 and HPP disease state, NF1 PN and HPP treatment, and Alexion’s patient support programs
• When possible, conducting impactful in-person or virtual educational events on behalf of Alexion to deliver disease and product information at scale
• Working in partnership with RAMS on educating offices on the PEM role and OneSource via inservices both live and virtually
• Building a robust rare disease network of NF1 PN and HPP advocates via active participation in local advocacy events to identify educational needs, raise disease awareness, and promote patient empowerment
• Delivering on data driven performance objectives and effectively tracking and communicating year-to-date progress to cross functional partners and Alexion leadership

Skills

Empathy

Presentation skills

Communication

Project coordination

Team collaboration

Time management

Adaptability

Travel readiness

Education

BA/BS degree

Advanced degree preferred

Job description

Alexion is seeking a NF1 PN and HPP Patient Education Manager (PEM) to engage with patients and families across a broad geography, delivering education and support through one-to-one meetings, events, and partner programs.

You will collaborate with the Patient Advocacy team and RAMS, build a regional engagement plan, and coordinate with Compliance, Legal, Marketing, and Medical to deliver compliant, scalable education while driving awareness of NF1 and HPP and connecting patients to resources.