NF1/HPP Patient Education Ambassador

Alexion Pharmaceuticals; Des Moines (IA); On-site; USD 135,000 - 203,000; Full time

Benefits offered by this job

Short-term incentive bonuses

Equity-based awards (salaried roles)

Commissions for sales roles

Retirement programs

Job summary

Alexion Pharmaceuticals is seeking NF1 PNand HPP Patient Education Managers (PEMs) to engage with NF1 and HPP patients and families locally. The PEM will lead 1:1 education sessions, develop regional engagement plans with Advocacy teams, and collaborate with cross-functional partners to deliver compliant patient outreach at scale.

Responsibilities include in-person or virtual events, network building among advocates, and data-driven reporting to leadership.

Qualifications

• Minimum of 4 years business experience in the healthcare industry.
• Experience engaging with patients and caregivers with rare/chronic conditions.
• Empathy for others with proven ability to listen well, connect meaningfully, and present complex information in 1:1 meetings.
• High initiative, solid work ethic, and consistent accountability.
• Ability to travel 60-80% of time, including evenings and weekends, with travel to IL, IN, MN, WI, IA.
• BA/BS degree required, advanced degree a plus.

Responsibilities

• Developing, in close partnership with Alexion Patient Advocacy and NF1PN and HPP brand marketing, a regional patient engagement plan that strategically supports commercial priorities
• Coordinating frequently with key cross functional partners to execute local patient outreach compliantly and effectively (e.g.: Compliance, Legal, Marketing, Market Access, Medical, Patient Advocacy, Patient Services, etc.)
• Educating patients, caregivers and families via 1:1 meetings, including face-to-face interactions, about NF1 and HPP disease state, NF1 PN and HPP treatment, and Alexion’s patient support programs
• When possible, conducting impactful in-person or virtual educational events on behalf of Alexion to deliver disease and product information at scale
• Working in partnership with RAMS on educating offices on the PEM role and OneSource via inservices both live and virtually
• Building a robust rare disease network of NF1 PN and HPP advocates via active participation in local advocacy events to identify educational needs, raise disease awareness, and promote patient empowerment
• Delivering on data driven performance objectives and effectively tracking and communicating year-to-date progress to cross functional partners and Alexion leadership

Skills

Empathy

Presentation skills

Travel readiness

Adaptability

Active listening

Education

BA/BS degree

Advanced degree a plus

Job description

Alexion Pharmaceuticals is seeking NF1 PNand HPP Patient Education Managers (PEMs) to engage with NF1 and HPP patients and families locally. The PEM will lead 1:1 education sessions, develop regional engagement plans with Advocacy teams, and collaborate with cross-functional partners to deliver compliant patient outreach at scale.

Responsibilities include in-person or virtual events, network building among advocates, and data-driven reporting to leadership.