Programs Associate

Nevus Outreach; United States; Remote; USD 20,457 - 29,136; Part time

Job summary

A nonprofit organization for rare diseases is seeking a Programs Associate to coordinate community programs and support member engagement. This role involves program development, logistics management, and member support, requiring strong organizational skills and experience in community-oriented settings. With a flexible, remote work environment, the position offers 8-12 hours per week at $18/hour, with a start date in early January 2026 and required attendance at a conference in July.

Qualifications

• Strong organizational skills with excellent attention to detail.
• Experience in program coordination or community support roles.
• Ability to work independently and take initiative.

Responsibilities

• Develop and coordinate member-facing programs.
• Facilitate community focus groups and manage logistics.
• Support management of membership onboarding and communications.

Skills

Organizational skills

Strong written and verbal communication

Community support experience

Proactive communication

Job description

Nevus Outreach is seeking a highly organized, community-minded Programs Associate to support our evolving membership ecosystem and help deliver high-impact programming for families in the United States and around the world.

This role blends data/membership management with the development and implementation of support resources and programs. The ideal candidate is detail-oriented, people-focused, and excited to build meaningful, supportive experiences for the CMN community.

What You’ll Gain:

• A collaborative role in shaping community-facing programming for a global rare disease nonprofit
• Experience designing and coordinating support offerings
• Hands‑on exposure to CRM systems, member workflows, and data-informed decision-making
• The opportunity to strengthen community belonging and engagement
• A flexible, remote position where your work directly impacts families navigating CMN

Responsibilities:

In this role, you will:

Program Development & Coordination (Primary Focus ~60%)

• In partnership with staff, you will help brainstorm, plan, deliver, and manage member‑facing programs, including:
• Facilitate Community Focus Groups
• Coordinate logistics, scheduling, and follow‑up for focus groups
• Capture feedback into actionable insights for steering programming, based on objectives provided by the Director of Membership & Metrics
• Resource Development & Maintenance
• Update, organize, and support the creation of resources, guides, and materials in the member portal
• Assist in producing educational and support resources for CMN
• Support Groups & Community Circles
• Plan virtual support groups, peer‑led circles, and/or topic‑specific educational sessions
• Handle scheduling, reminders, Zoom logistics, follow‑ups, and simple reporting
• Support early development of a “First 90 Days” series for new members
• Conference‑Adjacent Programming Support
• Assist with pre‑conference communications and program preparation for the 2026 Nevus Outreach Conference & Reunion

Membership Support (Secondary Focus ~40%)

• This role will also ensure that core systems remain accurate, functional, and well‑organized.
• Support management of membership onboarding, renewals, and communications
• Support staff in maintaining accurate records in our CRM with an emphasis on data cleanliness and consistency
• Pull simple reports for programming, communications, and community insights
• Assist with segmentation for email campaigns and program outreach
• Respond to member questions and provide warm, accurate, timely support

Qualifications:

• Strong organizational skills with excellent attention to detail
• Experience in program coordination, community support roles, education, or nonprofit settings
• Strong written and verbal communication skills
• Ability to work independently, take initiative, and communicate proactively
• Warm, friendly demeanor when interacting with families
• Ability to manage multiple small tasks and deadlines across a week
• Bonus (not required): Experience with rare disease communities, membership programs, support groups, curriculum/resource development, or virtual event facilitation.

Time Commitment & Compensation:

• This independent contractor role is compensated at $18.00/hour with an anticipated 8–12 hours of work per week.
• Remote‑first, with some availability during Eastern/Central U.S. business hours
• Start Date: Early January 2026
• Required attendance to support the Nevus Outreach Conference July 25–28, 2026
• Initial evaluation period of 90 days, with possible continuation through 2026