Ricevi una risposta da questo datore di lavoro — un curriculum e una lettera di presentazione personalizzati, che corrispondono esattamente a ciò che sta cercando.
The CSNK2A1 Foundation is a small, patient-centered nonprofit funding translational research for Okur-Chung Neurodevelopmental Syndrome. The Scientific Program Associate role supports the Chief Scientific Officer in coordinating global research initiatives, data handling, and stakeholder communications.
Ideal candidates are early-career scientists or recent PhDs with 2+ years of experience, capable of remote work across time zones and eager to contribute to a growing research network.
(CSNK2A1 Foundation – Remote with limited travel)
The CSNK2A1 Foundation is a patient-centered 501(c)(3) nonprofit organization focused on funding innovative, high-reward research with the potential to transform the lives of individuals with Okur-Chung Neurodevelopmental Syndrome (OCNDS) . Founded in 2018, the Foundation is building a patient-led research ecosystem where OCNDS families and researchers collaborate to identify relevant clinical questions, advance translational science, and accelerate progress toward effective treatments.
In just a few years, we have:
We are equally committed to cultivating the next generation of rare disease researchers through our active internship program ( learn more here ), which offers opportunities for students and early-career scientists to engage in translational research, data analysis, and patient-centered projects alongside our global collaborators.
Reporting to the Chief Scientific Officer, the Scientific Program Associate supports the implementation of the Foundation’s scientific initiatives and programs. The Associate collaborates with academic investigators, biotech and pharma partners, patient advocacy organizations, and funding agencies to help advance the Foundation’s research goals. This role assists in coordinating ongoing projects, managing data and deliverables, preparing scientific materials, and facilitating communication among stakeholders. The Associate contributes to strengthening the CSNK2A1/OCNDS research network, fostering innovation, and ensuring that Foundation resources are effectively aligned toward the shared goal of improving outcomes and accelerating treatments for individuals living with OCNDS.
The Scientific Program Associate will work closely with the Chief Scientific Officer to manage and coordinate ongoing scientific initiatives and partnerships across our global research network. This entry-level professional position is ideal for a recent PhD graduate or a candidate with a master’s degree and 2+ years of relevant experience seeking to contribute to rare disease research, translational science, and patient-centered research infrastructure within a fast-growing nonprofit.
This is a part-time (20 hours/week) contract position with an anticipated start date of March 2026 . The role offers the opportunity to gain broad exposure to preclinical and clinical research strategy, grant and project management, and stakeholder engagement, with the potential to grow into a full-time position in the future.
Fully remote with occasional in-person travel for conferences and meetings. The Foundation’s central office is located in San Francisco, California. The CSO is located in Nashville, TN.
The CSNK2A1 Foundation is an equal opportunity employer and does not discriminate on the basis of race, color, religion, gender, gender identity, national origin, citizenship, age, disability, sexual orientation, marital status, or any other category protected by law.
We are focused on finding a cure for Okur-Chung Neurodevelopmental Syndrome and ensuring affected individuals have the opportunities and supports necessary for happy and full lives. CSNK2A1 Foundation is operated and funded through a committed team of volunteers, advocates and researchers.
We are a 501(c)(3) non-profit organization.
EIN #82-4220939 .
The information provided is not intended to be a substitute for professional medical advice, diagnosis or treatment. Never disregard professional medical advice, or delay in seeking it, because of something you have read on this website. Read more...
All Rights Reserved | CSNK2A1 Foundation