Senior Privacy / Data Protection Analyst

Sage Bionetworks; Washington (District of Columbia); Hybrid; USD 81,000 - 109,000; Full time

Job summary

An innovative nonprofit organization is seeking a Senior Privacy/Data Protection Analyst to lead compliance with data privacy policies and develop governance frameworks. This role involves engaging with diverse stakeholders, assessing data-sharing initiatives, and implementing effective training programs. Join a dynamic team dedicated to advancing human health through open science and responsible data use. If you are passionate about ethical data practices and enjoy collaborating across disciplines, this opportunity is for you. Be part of a forward-thinking organization making a meaningful impact in science and medicine.

Benefits

Health Benefits

Dental Insurance

Vision Insurance

Paid Time Off

Retirement Plan

Flexible Spending Accounts

Voluntary Long Term Care Insurance

Qualifications

• 7+ years of experience in scientific data privacy and research compliance.
• Proven experience engaging diverse audiences effectively.
• Deep understanding of laws and regulations related to data.

Responsibilities

• Lead design and implementation of governance frameworks for research.
• Assess ethical and legal implications of data-sharing initiatives.
• Develop and implement privacy training and awareness programs.

Skills

Data Privacy

Research Compliance

Communication Skills

Problem-Solving Skills

Analytical Skills

Ethical Standards

Education

Bachelor's Degree in Relevant Field

Tools

AI and ML Understanding

Data Governance Frameworks

Job description

Senior Privacy / Data Protection Analyst

At Sage Bionetworks, we believe in the power of open science and interdisciplinary collaboration to create a new vision of human health. We strive for actionable biomedical insights through the responsible sharing and reuse of data, all guided by our deep scientific expertise and diligent governance controls.

We're a dynamic, adaptable team, and at Sage, we deeply value individuals who bring versatility and the ability to navigate across different roles and functions. A variety of experiences and perspectives enriches our culture of collaboration and continuous learning. Our partnerships—both within Sage and with external communities—are built on trust, transparency, and a shared commitment to growth. Together, we are making a meaningful impact in the fields of science and medicine.

As a Senior Privacy/Data Protection Analyst, you will be a member of the Privacy and Compliance Office supporting various independent research communities. We are looking for a person who has a strong commitment to scientific impact, a passion for advancing the ethical and responsible use of data to optimize human health, and enjoys engaging with scientists and researchers across many disciplines.

Job Summary:
As a Senior Privacy/Data Protection Analyst, you will lead and analyze compliance with data privacy policies and regulations, develop and implement privacy guidelines and training materials, and support collaborative data governance practices for various research communities under minimal supervision.

Key Responsibilities:

• Lead the design, implementation, and maintenance of governance frameworks to enable responsible research collaborations. Projects may include crowd-sourced analysis challenges, academic consortia, and public-private partnerships.
• Engage with diverse collaborators, including researchers, research participants, funders, and other partners to understand unique governance needs, concerns, and priorities.
• Assess the ethical, legal, and technical implications of data-sharing initiatives including big data sharing and AI/ML-based research.
• Develop creative strategies to mitigate potential risks to enable sharing goals.
• Serve as subject matter expert on privacy regulations, research compliance, and ethical standards.
• Facilitate the development and execution of data-sharing agreements through detailed review.
• Monitor and evaluate the effectiveness of data-sharing initiatives with a process improvement focus.
• Initiate and/or refine governance policies and procedures.
• Develop and implement privacy/governance training and awareness program materials.
• Collaborate within the Privacy and Compliance Office to respond to data incidents, including investigations, root cause analysis and corrective/preventive actions.
• Represent Sage at professional meetings.

We’d Love to Hear from You If You:

• Hold a bachelor’s degree in a relevant field.
• Have 7+ years of working experience, including 3+ years in scientific data privacy, research compliance, or a related area.
• Have a proven experience engaging and communicating effectively with diverse audiences, including scientifically and technically inclined audiences, academic consortia, and the general population.
• Have successfully developed and implemented procedures, policies, and institutional agreements.
• Have experience with, and understanding of, artificial intelligence (AI) and machine learning (ML) methods and their impact on responsible data governance.
• Understand F.A.I.R data sharing and ethical research principles.
• Have a deep, demonstrated understanding of relevant laws, regulations, ethical principles, and best practices related to working with human and animal data.
• Have experience with investigating and analyzing incidents, and developing Corrective Action/Preventive Action (CAPA) plans.
• Are familiar with legal language and agreement review.

Job Functions and Physical Requirements

The following cognitive and physical activities outline the essential functions required for successful job performance. Reasonable accommodations may be provided to enable individuals with disabilities to fulfill these functions.

Physical Demands

• Extended periods of sitting at a desk and using a computer.
• Repeated wrist, hand, and finger movements.
• Requires clear vision for tasks like data analysis, transcribing, computer use, and reading.
• Occasionally lifting or moving objects weighing up to 10 pounds.

Cognitive Demands

• Able to work effectively under deadlines.
• Strong problem-solving and analytical skills.
• Attention to detail and accuracy.
• Flexibility to adapt to changing environments, priorities and multitask.

Additional Requirements

• Travel is required a minimum of two times per year for on-site events in Seattle, WA.
• Effective verbal and written communication skills.
• Works well in a team and maintains professionalism.
• Follows company policies, procedures, and relevant laws and regulations.

Note: This list is not exhaustive and may be subject to modification as job duties evolve.

About Us

Sage Bionetworks is a nonprofit biomedical research organization that was founded in Seattle in 2009. We focus on advancing human health through open science practices and radical collaboration, with a view to breaking down existing silos in science and technology. Through our work, we guide responsible data sharing and reuse, benchmark scientific methods and results, and empower participants to be active partners in research. We are a bold team of scientists, engineers, product developers, governance specialists and business experts, working to bring data and communities together in unique ways that accelerate medical progress. As a growing organization, Sage is supported through a dynamic portfolio of competitive research grants, commercial partnerships, and philanthropic contributions.

Sage Bionetworks is pleased to offer a comprehensive benefit package, competitive to both commercial and not-for-profit life science organizations. The plan includes: health, dental, vision, life, AD&D and long term disability benefits; paid time off; a retirement plan; flexible spending accounts; a shared incentives plan, voluntary long term care insurance, and other voluntary products. Additional information can found here: Benefits – Sage Bionetworks

At Sage Bionetworks, we implement equitable workplace strategies to guarantee fair compensation. Actual compensation is determined based on current market data, experience, and internal pay parity. This position is classified as a Sage Senior level, with a salary range of $81,700 to $108,265. New hires typically receive an offer between the minimum and midpoint of the range, although higher offers may be considered based on experience and market conditions.

We have a distributed workforce and support remote and/or on-site hybrid work arrangements within the United States. All interviews will be conducted virtually unless otherwise communicated.

At Sage Bionetworks, we uphold equal employment opportunities for all employees and applicants without regard to race, color, religion, sex, sexual orientation, gender identity, national origin, age, disability, marital status, or veteran status. We strictly prohibit discrimination and harassment based on these protected categories, in compliance with federal and state equal employment opportunity laws.