PKU Patient Success Navigator — Adherence & Support

PTC Therapeutics, Inc; SOUTH PLAINFIELD (NJ); Hybrid; USD 97,000 - 122,000; Full time

Job summary

PTC Therapeutics, Inc. seeks a Patient Support Specialist to guide rare disease patients (e.g., PKU) and families through therapy initiation, adherence, and transitions, in collaboration with Sales, Patient Engagement, and Case Manager teams.

The role emphasizes education, coaching, and logistics, with HIPAA compliance and quality standards, and may involve up to 50% travel and West Coast base preference.

Qualifications

• Bachelor's Degree and 5+ years of clinical nutrition, nursing, or patient counseling.
• Experience with PKU or inherited metabolic disorders preferred.
• Strong coaching, education, and documentation skills.

Responsibilities

• Educate patients and caregivers on disease state, treatment, and safety.
• Coordinate initiation and ongoing patient support with cross-functional teams.
• Identify barriers to adherence and provide solutions.
• Document interactions accurately and maintain HIPAA compliance.
• Support transitions in care and escalate urgent concerns when needed.

Skills

Patient education

Coaching skills

Logistics management

HIPAA compliance

Healthcare communications

Microsoft Office

Education

Bachelor's Degree

License or Master's preferred

Tools

EMR/CRM systems

Job description

PTC Therapeutics, Inc. seeks a Patient Support Specialist to guide rare disease patients (e.g., PKU) and families through therapy initiation, adherence, and transitions, in collaboration with Sales, Patient Engagement, and Case Manager teams.

The role emphasizes education, coaching, and logistics, with HIPAA compliance and quality standards, and may involve up to 50% travel and West Coast base preference.