PKU Patient Support Specialist - Adherence & Care Coord

PTC Therapeutics, Inc.; Nevada (IA); On-site; USD 97,000 - 122,000; Full time

Job summary

PTC Therapeutics is seeking a Patient Support Specialist to assist rare disease patients (e.g., PKU) and caregivers, coordinating therapy initiation and ongoing support with Sales, Patient Engagement, and Case Manager teams. This role emphasizes adherence, training, and logistical responsibilities using approved materials.

The position requires a Bachelor's degree with 5+ years in clinical nutrition, nursing, or patient counseling; licensed Dietitian or Nurse preferred.

Qualifications

• Bachelor’s Degree and 5+ years of clinical nutrition/nursing and/or patient counseling experience with adherence/behavior change skills.
• Dietitian/Nursing license and/or Master’s degree preferred.

Responsibilities

• Educate patients and caregivers on disease state, medication safety, administration and storage via phone/video and other approved channels.
• Coordinate therapy initiation and ongoing patient support with Case Manager, Patient Engagement, and Sales to ensure a seamless patient experience.
• Assist with adherence, patient education, and logistics to support PTC Cares program.
• Identify adherence barriers and support transition milestones (e.g., adolescence to adulthood).
• Escalate urgent concerns per program guidance and HIPAA requirements.

Skills

Clinical nutrition

Patient counseling

Adherence coaching

Microsoft Office

Education

Bachelor’s Degree and 5+ years of clinical nutrition/nursing and/or patient counseling experience

Dietitian/Nursing license and/or Master’s degree preferred

Tools

EMR/CRM documentation

Microsoft Office

Job description

PTC Therapeutics is seeking a Patient Support Specialist to assist rare disease patients (e.g., PKU) and caregivers, coordinating therapy initiation and ongoing support with Sales, Patient Engagement, and Case Manager teams. This role emphasizes adherence, training, and logistical responsibilities using approved materials.

The position requires a Bachelor's degree with 5+ years in clinical nutrition, nursing, or patient counseling; licensed Dietitian or Nurse preferred.