Fundraising Strategist — Rare Disease Impact

Digital; Malaysia; On-site; MYR 80,000 - 120,000; Full time

Job summary

Digital in Malaysia is seeking an experienced Fundraising Specialist to develop and execute a diversified fundraising program dedicated to Barth syndrome research and patient support.

You will lead across individual giving, major gifts, grants, corporate partnerships, and digital campaigns, translating complex medical information into compelling donor messaging.

The role blends strategic planning with hands-on execution, building a small global community and advancing treatments and a cure.

Qualifications

• Experience fundraising within nonprofits or mission-driven organizations.
• Proven success securing funding from individuals, major donors, corporations, foundations, grantmakers, or government bodies.
• Experience managing crowdfunding, peer-to-peer, or digital fundraising campaigns through GoFundMe or similar platforms.
• Strong skills in grant research, proposal writing, donor communications, relationship management, and presentations.
• Ability to translate complex medical or scientific information into clear, credible, and compelling donor messaging.
• Resourceful and entrepreneurial approach to building support for a specialized cause with a small global patient population.

Responsibilities

• Demonstrated fundraising experience within nonprofits, rare diseases, healthcare, medical research, patient advocacy, or other mission-driven organizations.
• Proven success securing funding from individuals, major donors, corporations, foundations, grantmakers, or government bodies.
• Experience managing crowdfunding, peer-to-peer, or digital fundraising campaigns through GoFundMe or similar platforms.
• Strong skills in grant research, proposal writing, donor communications, relationship management, and presentations.
• Ability to translate complex medical or scientific information into clear, credible, and compelling donor messaging.
• Resourceful and entrepreneurial approach to building support for a specialized cause with a small global patient population.

Skills

Fundraising

Donor communications

Grant writing

Digital fundraising

Campaign management

GoFundMe

Tools

GoFundMe

Job description

Digital in Malaysia is seeking an experienced Fundraising Specialist to develop and execute a diversified fundraising program dedicated to Barth syndrome research and patient support.

You will lead across individual giving, major gifts, grants, corporate partnerships, and digital campaigns, translating complex medical information into compelling donor messaging.

The role blends strategic planning with hands-on execution, building a small global community and advancing treatments and a cure.