Remote Grant Writer (Freelance) – Rare Disease Funding Pro

Digital; Elm (PA); Remote; USD 55,000 - 96,000; Full time

Job summary

Digital is seeking an experienced Grant Writer (Freelance, Remote) to support a nonprofit focused on Barth syndrome. You will research funding opportunities and develop compelling grant proposals to advance research and support affected families.

The role emphasizes prospect research, high-quality proposals, and clear communication of impact to funders. You will work independently, manage deadlines, and collaborate with staff to strengthen the organization's funding pipeline.

Qualifications

• Proven track record of developing grant proposals and securing funding for nonprofits.
• Experience in healthcare, medical research, rare diseases, or patient advocacy sectors.
• Expertise in grant prospecting, funder research, and proposal strategy.
• Excellent storytelling, editing, and written communication skills.
• Highly organized with ability to manage multiple applications and deadlines.

Responsibilities

• Research and identify relevant foundation, corporate, government, and institutional grant opportunities.
• Develop and submit compelling grant proposals, letters of inquiry, applications, and supporting materials.
• Collaborate with internal stakeholders to gather information needed for applications.
• Maintain grant calendars and track deadlines, submissions, reporting requirements, and funding outcomes.
• Support grant reporting and funder communications as needed.

Skills

Grant research

Proposal writing

Fundraising strategy

Storytelling & editing

Job description

Digital is seeking an experienced Grant Writer (Freelance, Remote) to support a nonprofit focused on Barth syndrome. You will research funding opportunities and develop compelling grant proposals to advance research and support affected families.

The role emphasizes prospect research, high-quality proposals, and clear communication of impact to funders. You will work independently, manage deadlines, and collaborate with staff to strengthen the organization's funding pipeline.