Remote Grant Writer for Rare-Disease Research (Freelance)

Digital; United States; Remote; USD 60,000 - 100,000; Part time

Job summary

Digital is seeking an experienced Grant Writer (Freelance, Remote) to support a nonprofit focused on Barth syndrome. The role involves researching funding opportunities and crafting compelling grant proposals to advance scientific research and patient advocacy efforts.

The ideal candidate will bring a strong track record in researching prospects, developing proposals, and communicating impact to funders, while managing multiple applications and deadlines remotely.

Qualifications

• Strong track record of developing successful grant proposals and securing institutional funding.
• Significant grant writing and fundraising experience within nonprofit, healthcare, medical research, rare disease, patient advocacy, or related sectors.
• Strong grant research, proposal writing, storytelling, editing, and communication skills.

Responsibilities

• Research and identify relevant foundation, corporate, government, and institutional grant opportunities.
• Develop and submit compelling grant proposals, letters of inquiry, applications, and supporting materials.
• Collaborate with internal stakeholders to gather research, program, impact, financial, and organisational information needed for applications.
• Maintain grant calendars and track deadlines, submissions, reporting requirements, and funding outcomes.
• Support grant reporting, funder communications, and proposal revisions as needed.

Skills

Grant research

Grant writing

Proposal development

Fundraising

Editing

Communication

Job description

Digital is seeking an experienced Grant Writer (Freelance, Remote) to support a nonprofit focused on Barth syndrome. The role involves researching funding opportunities and crafting compelling grant proposals to advance scientific research and patient advocacy efforts.

The ideal candidate will bring a strong track record in researching prospects, developing proposals, and communicating impact to funders, while managing multiple applications and deadlines remotely.