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Digital is seeking an experienced Healthcare Fundraising Consultant to develop and execute a diversified fundraising program for Barth syndrome research and patient support across individuals, corporations, foundations, grants, sponsorships, and digital campaigns to accelerate treatments and a cure for a rare global patient population.
You will translate complex medical information into clear donor messaging, build donor stewardship, and establish targets, timelines, budgets, and performance
We are seeking an experienced Healthcare Fundraising Consultant to develop and execute a diversified fundraising program dedicated to improving the lives of individuals and families affected by Barth syndrome, an ultra-rare disease affecting approximately 350 known individuals globally.
We aim to raise funds to support scientific research, advance treatments and a cure, provide resources to affected families, and strengthen the global Barth syndrome community.
The role combines strategic planning with hands‑on execution across individual, corporate, institutional, government, and digital fundraising channels.