Rare Disease Patient Engagement Lead

Apellis Pharmaceuticals; Minneapolis (MN); On-site; USD 117,000 - 170,000; Full time

Benefits offered by this job

401(k) with company match

Inclusive family building benefits

Flexible time off

Summer and winter shutdowns

Paid family leave

Disability and life insurance

Job summary

Apellis Pharmaceuticals in the United States seeks a field-based engagement lead to strengthen patient education and advocacy across rare diseases. You will partner with marketing, patient services, and external organizations to build programs, recruit speakers, and share patient stories at events and conferences.

The role requires a bachelor’s degree and 3+ years in biotech/pharma, with travel 50-75%. Base salary ranges from $117,000 to $170,000 with comprehensive benefits and a focus on

Qualifications

• Bachelor’s degree required.
• 3+ years of biotech/pharma experience.
• Previous work or clinical experience educating patients/caregivers strongly preferred.
• Experience in rare disease preferred.

Responsibilities

• Build and execute a community engagement and patient education program plan for the local territory (US).
• Represent Biogen at conferences, walks, and other community events.
• Provide outreach to patients to let them know of upcoming events, resources, and other information that is helpful and supportive for their journey.
• Plan and execute programming for the patient communities, leveraging tactics from marketing and content provided from partnerships with contracted patients.
• Build and maintain proficiency in the disease state, patient experience, and product to support the needs of the community.
• Work collaboratively with Patient Advocacy,HematologyMarketing, and/orNephrologyMarketing functions, Patient Services, and local field teams.
• Be a voice for the patient community and patient experience within the organization.
• Establish and nurture relationships with contracted patients. Support Patient Ambassador engagements with the Patient Services and Marketing Teams, Senior Leadership and Executive Committee throughout the year and at congresses.
• Partner closely withcontracted patients and community members, and local Advocacy Organizationsto identify and refine program offerings to ensure they are resonant with thepatient communities.
• Maintain theunbranded (CIG) and branded (EEB) patient speaker bureau– identify and recruit potential speakers, train speakers on approved promotional slide decks, partner with the marketing team on planning thepatient summit speaker training events, and assist speakers with completion of annual compliance training.
• Partner withPatientmarketing teams on the execution of commercialPatientadvisory boards: help identify appropriate advisors based on objectives and agenda and provide input into meeting objectives and content
• Partner withPatient marketing team on content development for patient programs and resources by providing input based on patient and community insights and feedback
• Build strong, positive relationships with key cross-functional partners, includingpatient advocacyand field teams.
• Supportthe development of personal and non-personal tactics, including but not limited to patient programs, advisory boards, co-development of content with patient ambassadors, live events on social media, social media content.
• Support US Brand Planning by providing insights from Ambassadors and communities
• Help to define and execute the vision and plan for US marketing by providing insights from Community Insights Group and Patient Ambassadors, executing programming and community engagement consistent with US Brand Planning and Strategy
• Developing field execution strategy for patient-facing initiatives in partnership with training and sales leadership and patient services leadership
• Work closely with regulatory, legal, and compliance to build policies and procedures related to marketing, including speaker bureaus and advisory boards

Education

Bachelor’s degree

Job description

Apellis Pharmaceuticals in the United States seeks a field-based engagement lead to strengthen patient education and advocacy across rare diseases. You will partner with marketing, patient services, and external organizations to build programs, recruit speakers, and share patient stories at events and conferences.

The role requires a bachelor’s degree and 3+ years in biotech/pharma, with travel 50-75%. Base salary ranges from $117,000 to $170,000 with comprehensive benefits and a focus on