Rare Disease Advocacy & Partnerships Lead

Sobi - Swedish Orphan Biovitrum AB (publ); Washington (District of Columbia); On-site; USD 150,000 - 180,000; Full time

Benefits offered by this job

401(k) match

Tuition reimbursement

Wellness reimbursement

Medical, dental, and vision coverage

Recognition awards

Job summary

Sobi is seeking a seasoned external relations and advocacy professional in Washington, DC area to shape and drive engagement with patients, policymakers, and partners across the product lifecycle. You will coordinate with cross-functional teams and ensure advocacy activities align with corporate priorities and patient needs.

Ideal candidates have 5+ years in pharma advocacy, strong communication skills, and the ability to travel up to 30% as needed.

Qualifications

• 5+ years of relevant advocacy/external relations experience
• Experience supporting advocacy across pharma lifecycle
• Experience with rare diseases
• Strong written and oral communication
• Excellent relationship-building with stakeholders
• High emotional intelligence and cross-cultural sensitivity

Responsibilities

• Support development and execution of external relations and advocacy plan across development and commercialization continuum
• Cultivate relationships with patient advocacy groups, policymakers, and professional organizations
• Lead day-to-day execution of initiatives with external stakeholders
• Collaborate with internal cross-functional teams to meet enterprise priorities
• Represent Sobi's commitment to patients and caregivers in policy matters
• Coordinate with partner orgs and manage logistics for joint activities
• Manage agencies/vendors supporting advocacy programs and ensure timely deliverables
• Ensure advocacy materials comply with internal review processes
• Monitor policy landscape and flag relevant developments

Job description

Sobi is seeking a seasoned external relations and advocacy professional in Washington, DC area to shape and drive engagement with patients, policymakers, and partners across the product lifecycle. You will coordinate with cross-functional teams and ensure advocacy activities align with corporate priorities and patient needs.

Ideal candidates have 5+ years in pharma advocacy, strong communication skills, and the ability to travel up to 30% as needed.