Head of Community Growth & Engagement

Probably Genetic Inc.; San Francisco, Northern (CA, KY); Hybrid; USD 120,000 - 185,000; Full time

Benefits offered by this job

Hybrid work

Equity grants

Parental leave

Health benefits

Job summary

Probably Genetic is seeking a Head of Community Marketing to build and lead our community growth strategy for patients, families, and caregivers in the rare disease space. You will own virtual and in-person channels, activate campaigns, and nurture partnerships with patient advocacy groups.

Regular travel to events and conferences is expected as part of representing the company. The role requires 5–10 years of experience in community marketing, a proven ability to grow engaged communities, and a

Qualifications

• 5-10 years of experience in community marketing or community-led growth at a consumer brand known for genuine community engagement
• A track record of building or significantly growing a community with active participation
• Creative instincts for community activation, from concept to execution
• Fluency in both virtual and in-person community building
• Comfort using data to guide decisions and identify what's driving growth, engagement, and CAC
• Genuine empathy for engaging a sensitive, high-stakes population; you never lose sight of the real people behind the community
• Strong written and verbal communication; you can shape a brand's voice and adapt it to a high-trust context
• Willingness to travel regularly for events and partner meetings

Responsibilities

• Define and own our community marketing strategy, spanning virtual (social, online groups, content, email) and in-person (events, conferences, meetups, fundraisers) channels
• Develop original campaign concepts to activate and grow patient and caregiver communities
• Build and own relationships with patient advocacy groups (PAGs) and foundations across hundreds of rare diseases, strengthening existing partnerships and cultivating new ones
• Test and iterate across tactics, including referral and email outreach, PAG partnerships and sponsorships, events, participant compensation, and paid media
• Track how community efforts influence key metrics, including patient acquisition and CAC, and adjust strategy accordingly
• Build scalable, repeatable playbooks for community-driven growth
• Represent Probably Genetic at conferences, fundraisers, and community events, with regular travel expected

Skills

Community marketing

Growth strategy

Data-driven

Travel readiness

Job description

Probably Genetic is seeking a Head of Community Marketing to build and lead our community growth strategy for patients, families, and caregivers in the rare disease space. You will own virtual and in-person channels, activate campaigns, and nurture partnerships with patient advocacy groups.

Regular travel to events and conferences is expected as part of representing the company. The role requires 5–10 years of experience in community marketing, a proven ability to grow engaged communities, and a