Head of Community Growth & Patient Advocacy

Probably Genetic Inc.; San Francisco (CA); On-site; USD 120,000 - 190,000; Full time

Job summary

Jobtailor is seeking a seasoned Community Marketing Leader in the San Francisco area to own virtual and in-person engagement strategies, developing campaigns that activate patient and caregiver communities. You will forge strong relationships with patient advocacy groups and foundations while tracking CAC and program impact.

You will articulate scalable playbooks, partner with events, and travel to conferences and fundraisers to expand brand presence in the rare-disease space.

Qualifications

• 5-10 years of experience in community marketing or community-led growth at a consumer brand known for genuine community engagement.
• Track record of building or significantly growing a community with active participation, member-generated content, referrals, and brand-organized activity.
• Creative instincts for community activation from concept to execution.
• Fluency in virtual and in-person community building.
• Comfort using data to guide decisions and identify growth, engagement, and CAC drivers.
• Genuine empathy for engaging a sensitive, high-stakes population.
• Strong written and verbal communication skills.
• Willingness to travel regularly for events and partner meetings.

Responsibilities

• Define and own the community marketing strategy across virtual channels including social, online groups, content, and email.
• Define and own the community marketing strategy across in-person channels including events, conferences, meetups, and fundraisers.
• Develop original campaign concepts to activate and grow patient and caregiver communities.
• Build and own relationships with patient advocacy groups and foundations across hundreds of rare diseases.
• Strengthen existing partnerships and cultivate new patient advocacy group and foundation relationships.
• Test and iterate referral and email outreach, partnerships and sponsorships, events, participant compensation, and paid media.
• Track the impact of community efforts on patient acquisition and CAC.
• Adjust strategy based on performance data.
• Build scalable, repeatable playbooks for community-driven growth.
• Represent Probably Genetic at conferences, fundraisers, and community events.
• Travel regularly for events and partner meetings.
• Help Probably Genetic grow an engaged community of patients, families, and caregivers.

Skills

Community Marketing

Data-Driven Decisions

Relationship Building

Campaign Development

Event Representation

Job description

Jobtailor is seeking a seasoned Community Marketing Leader in the San Francisco area to own virtual and in-person engagement strategies, developing campaigns that activate patient and caregiver communities. You will forge strong relationships with patient advocacy groups and foundations while tracking CAC and program impact.

You will articulate scalable playbooks, partner with events, and travel to conferences and fundraisers to expand brand presence in the rare-disease space.