Research Engagement and Involvement Coordinator

MND Association; Northampton; Hybrid; GBP 32,000 - 46,000; Full time

Benefits offered by this job

28 days holiday (33 after 5 years)

UK Healthcare access

24/7 GP access

Life assurance

Cycle to Work scheme

Discount Hub

Enhanced pension

Training & development

Hybrid working

Job summary

MND Association is seeking a Research Engagement and Involvement Co-ordinator to support public and patient involvement across our research programme. You will coordinate webinars, events and workshops, connect researchers with the MND community, and help run surveys and focus groups.

You will also provide admin support, co-create engagement resources with people affected by MND, and ensure data protection compliance across activities. Hybrid role with one day per week in Northampton.

Qualifications

• Graduate calibre or equivalent in biological sciences, public engagement or communications.
• Experience supporting public engagement or involvement activities.
• Experience working with diverse communities or in people-focused roles.
• Strong written and verbal communication skills.
• Strong organisational skills with the ability to manage multiple priorities.
• Confidence using a range of digital tools, systems and online platforms.
• Knowledge of public and patient involvement and engagement practices.

Responsibilities

• Coordinate webinars, workshops, events, podcasts and other engagement activities that connect researchers and the MND community.
• Support the delivery of public and patient involvement and engagement activities across the research programme.
• Help coordinate research participation opportunities through the Take Part in Research webpage.
• Provide administrative support for meetings, communications and documentation.
• Co-produce engagement resources with people affected by MND.
• Support focus groups, surveys and other activities that gather community perspectives.
• Work with colleagues across teams to promote consistent and accessible communications.
• Maintain accurate records, evaluation data and reports, ensuring compliance with data protection requirements.

Skills

Public engagement

Event coordination

Verbal and written communication

Time management

Digital tools & platforms

Data protection awareness

Collaboration

Education

Graduate calibre or equivalent in biological sciences/public engagement/communications

Job description

As a Research Engagement and Involvement Co-ordinator, you will support public and patient involvement and engagement activities across the MND Association's research programme. You will help coordinate key initiatives, including the Community Research Advisory Network and EnCouRage, ensuring people affected by motor neurone disease (MND) can contribute to research in meaningful and inclusive ways.

• Coordinate webinars, workshops, events, podcasts and other engagement activities that connect researchers and the MND community
• Support the delivery of public and patient involvement and engagement activities across the research programme
• Help coordinate research participation opportunities through the Take Part in Research webpage
• Provide administrative support for meetings, communications and documentation
• Co-produce engagement resources with people affected by MND
• Support focus groups, surveys and other activities that gather community perspectives
• Work with colleagues across teams to promote consistent and accessible communications
• Maintain accurate records, evaluation data and reports, ensuring compliance with data protection requirements

Essential

• Graduate calibre or equivalent experience, ideally in biological sciences, public engagement or communications
• Experience supporting public engagement or involvement activities
• Experience working with diverse communities or in people-focused roles
• Strong written and verbal communication skills
• Strong organisational skills with the ability to manage multiple priorities
• Confidence using a range of digital tools, systems and online platforms
• Knowledge of public and patient involvement and engagement practices

Desirable

• Ability to communicate scientific or technical information clearly and accurately
• Experience coordinating events or delivering workshops
• Understanding of health research or neuroscience

Hybrid working Expectations: 1 day per week in our Northampton office

Motor Neurone Disease moves fast. It takes away time, it takes away independence and it has no cure. Every day we support people affected by MND. We fund ground-breaking research. We campaign for better care. We're here for everyone who needs us. Because with MND, every day matters.

We are committed to equality, diversity, and inclusivity. We work to remove barriers for everyone affected by MND, employees, volunteers, and stakeholders. As part of the Disability Confident Scheme, we guarantee interviews for disabled applicants who meet the role's requirements.

Organisation MND Association View profile Registered Charity 101 - 500 We support people affected by Motor Neurone Disease, campaign for better care and fund ground-breaking research. Because with MND, every day matters.

What We Offer

• 28 days holiday, increasing to 33 days after 5 years, plus Bank Holidays
• Access to UK Healthcare, including dental, eyecare, health screenings, and therapies
• 24/7 GP access via phone and video
• Life assurance and confidential counselling helplines
• Salary sacrifice schemes (Cycle to Work, Buy/Sell Annual Leave)
• Access to Benefit Hub for discounts on everyday shopping
• Enhanced pension scheme
• Opportunities for training and personal development
• Hybrid working