Senior Director of Government Affairs, Policy, and Payer Access (Patient Access)

Bleeding; New York (NY); Remote; USD 105,000 - 115,000; Full time

Job summary

A leading organization dedicated to improving healthcare access for individuals with bleeding disorders seeks a Senior Director of Government Affairs. This fully remote role involves strategic leadership, stakeholder engagement, and policy advocacy to enhance patient access. The ideal candidate will have extensive experience in public policy and healthcare, excellent communication skills, and a strong ability to influence change in a complex landscape. The role includes domestic travel and offers a competitive salary with comprehensive benefits.

Benefits

Comprehensive health and wellness plans

Paid time off

Retirement plans

Disability and life insurance

Parental leave

Qualifications

• At least 10 years in public policy analysis or government relations.
• Minimum 5 years working with federal healthcare programs.

Responsibilities

• Lead NBDF’s efforts to improve healthcare access for individuals with bleeding disorders.
• Manage and implement the annual payer relations strategic plan.
• Build and maintain partnerships with payers and advocacy groups.

Skills

Communication

Collaboration

Project Management

Policy Analysis

Public Speaking

Education

Bachelor’s degree

Graduate degree in public policy

Tools

MS Office

Job description

All Jobs > Senior Director of Government Affairs, Policy, and Payer Access (Patient Access)

Fully Remote • New York

Description

About The National Bleeding Disorders Foundation (NBDF)

The National Bleeding Disorders Foundation (NBDF) is dedicated to finding cures for inheritable blood and bleeding disorders and to addressing and preventing the complications of these disorders through research, education, and advocacy, enabling people and families to thrive. Learn more at Bleeding.org.

About the Role

The Senior Director of Government Affairs, Policy, and Payer Access (Patient Access) leads NBDF’s efforts to improve healthcare access for individuals with bleeding disorders. You will develop strategic partnerships with payers, Hemophilia Treatment Centers (HTCs), and community stakeholders, while driving solutions to systemic barriers. This role requires strategic and operational leadership in executing NBDF’s access strategy via research, policy advocacy, education, and program oversight. The ideal candidate will have excellent communication, presentation, collaboration skills, and the ability to influence change in a complex healthcare landscape.

Key Responsibilities

Strategic Leadership and Policy Development

• Manage, co-develop with the SVP of Access and Public Policy, and implement the annual payer relations strategic plan.
• Lead the development and evaluation of healthcare policies and programs, advocating for legislative and regulatory change at federal and state levels.
• Contribute to strategic planning and budgeting, including financial management and expense oversight.
• Provide evidence-based policy research and analysis to inform recommendations and strategies for senior management.
• Design and lead evaluative initiatives and studies on emerging health and safety issues.

Access Innovation and Oversight

• Oversee the design and implementation of pilot initiatives under the Comprehensive Care Sustainability Collaborative (CCSC), including national events and communication strategies.
• Address access issues from insurance and Marketplace changes, developing mitigation strategies.
• Lead NBDF’s Insurance and Reimbursement Conference to advance payer strategy and community access.

Stakeholder Engagement and Relations

• Build and maintain partnerships with payers, brokers, employers, HTCs, government agencies, and advocacy groups.
• Represent NBDF at national payer initiatives, meetings, and conferences.
• Collaborate with the Hemophilia Alliance Payer Team and other stakeholders to align goals and outreach efforts.

Education and Knowledge Leadership

• Support HTCs, NBDF chapters, and payer teams on billing, reporting, and compliance issues.
• Educate healthcare providers, hospitals, and insurance administrators on relevant policies and systems.
• Create and refine educational materials, white papers, and presentations to inform stakeholders.
• Address urgent access challenges at the patient and provider level, developing case studies as needed.
• Maintain expertise in 340B regulations, payer trends, billing, and reimbursement policy developments.

Requirements

What You Bring:

• Bachelor’s degree required; graduate degree in public policy, administration, law, or business preferred.
• At least 10 years in public policy analysis, education, administration, or government relations.
• Minimum 5 years working with federal healthcare programs, payers, providers, or managed care organizations.
• Excellent public speaking, presentation, research, policy analysis, and communication skills.
• Proven ability to lead complex projects and oversee daily operations.
• Ability to collaborate with diverse stakeholders.
• Proficiency in MS Office, internet research, and databases.
• Knowledge of healthcare policy and blood disorders preferred.

Core Values and Attributes

All employees align with NBDF’s core behaviors: Respect, Accountability, Service, and Support. Success in this role depends on strong communication, project management, strategic thinking, and relationship-building skills. The ability to work strategically and collaboratively across boundaries is essential.

Work Environment

This position is remote, with up to 35% domestic travel (2-3 times/month), including overnight stays. Travel involves presentations at regional meetings, MASAC, and other key events, including in-person and virtual programs like the Bleeding Disorders Conference and CCSC events.

What We Offer

NBDF values diversity and inclusion, offering a supportive environment where all individuals are heard and valued. Benefits include competitive salary, comprehensive health and wellness plans, paid time off, retirement plans, disability and life insurance, and parental leave.

Compensation

The starting salary range is $105,000–$115,000, non-negotiable to ensure internal pay equity. We encourage applicants from diverse backgrounds and those with lived experience of impairments to apply. Reasonable accommodations are available during the interview and onboarding processes.

Qualified applicants will be considered without regard to protected characteristics, and we strongly encourage applications from people of color, Tribal Nations members, LGBTQ+ individuals, gender-nonconforming people, veterans, and multilingual speakers.