Research Director

BioSpace; United States; Remote; USD 125,000 - 140,000; Full time

Job summary

An established industry player is seeking a passionate Research Director to lead innovative research initiatives for a rare genetic condition. This full-time, remote position offers a unique opportunity to drive impactful research and foster collaborations with leading scientists and industry partners. The ideal candidate will excel in strategic planning, project management, and communication. Join a dedicated team committed to advancing treatment options and improving the lives of those affected by this ultra-rare disease. If you thrive in a dynamic environment and are eager to make a difference, this role is for you.

Benefits

Health Insurance Contribution

Dental Insurance

Vision Insurance

Short-term and Long-term Disability

Parental Leave

Generous PTO Policy

Paid Holidays

Home Office Equipment Stipend

Monthly Cell and WIFI Stipend

Qualifications

• 5+ years in research program management in nonprofit or industry.
• Minimum 3 years of supervisory experience required.

Responsibilities

• Lead strategy for research towards effective treatments.
• Oversee international research grant portfolio management.

Skills

Research Program Management

Leadership

Communication Skills

Collaboration

Project Management

Creative Problem Solving

Education

BS in Biomedical Sciences

Masters, PhD, or MD

Tools

Microsoft Office

Google Workspace

Web-based Project Management Tools

Job description

Join to apply for the Research Director role at BioSpace

2 weeks ago Be among the first 25 applicants

Join to apply for the Research Director role at BioSpace

Organization’s Mission: To fund research to find a cure for FOP while supporting, connecting, and advocating for individuals with FOP and their families, and raising awareness worldwide.

About the Organization: The International Fibrodysplasia Ossificans Progressiva (FOP) Association (IFOPA) is the leading international nonprofit organization dedicated to accelerating research initiatives and supporting those impacted by FOP, a rare, disabling genetic condition that causes bone to form in muscles, tendons, ligaments, and other connective tissues. As an organization, we work closely with patients and families, national FOP organizations around the world, and leading scientists, clinicians, and drug developers. A volunteer board of directors governs the IFOPA.

Since our founding in 1988, the IFOPA has fostered over $15 million in FOP-specific research grants, as well as built a variety of research tools and partnered with industry and academia to support the recruitment of a natural history study and 8 clinical trials. In 2014, the IFOPA founded the only scientific meeting focused on FOP – the FOP Drug Development Forum. The IFOPA also conducts its own real-world evidence and patient insights research, including the only FOP registry in the world and studies on prevalence, health literacy, and access burdens. This role is an opportunity to develop and lead the research program in an ultra-rare but scientifically prominent disease with five clinical trials in progress and active research around the world.

Position Overview: The IFOPA seeks a dynamic, collaborative, and highly motivated leader interested in rare disease research and development in academic and industry settings to focus and prioritize research and drug development investments and activities where there is the most potential for impact, and where the IFOPA has unique value to contribute.

The Research Director cultivates strong relationships with key partners, including academic researchers, clinician scientists, scientific advisors, and industry partners around the world to speed the development of treatments and increase the understanding of FOP. The Director oversees all aspects of the IFOPA’s research portfolio, including the creation and execution of the research strategy, identification and support of partnerships and collaborations, management of research grant programs, expansion and utilization of IFOPA-developed research tools like the FOP Registry, and publication of IFOPA-led research.

The Research Director is a highly motivated, creative leader dedicated to advancing FOP research to improve the lives of those living with this ultra-rare disease. The Research Director will have management experience in a dynamic and fast-paced setting. The role requires outstanding organizational, communication, and leadership skills and an ability to develop innovative solutions that push boundaries. The Research Director will work closely with the IFOPA’s Executive Director, Research Committee, and governing Board of Directors to strategize and develop short and long-term plans that usher in new levels of productivity and success for the organization.

This is a full-time exempt position supervising the Real-World Evidence Manager. The position is fully remote, but will require some travel for professional conferences, IFOPA events, and staff retreats. The ideal candidate is experienced as a senior scientific leader for a patient advocacy organization or in academia or industry. This candidate maintains both the integrity of the details and the ability to meet deadlines in a fast-paced environment. Strong interpersonal skills, collaboration, and diplomacy are needed.

Responsibilities

• Lead the IFOPA's development of a strategy and plan for supporting research towards effective and available treatments and, one day, a cure while prioritizing the IFOPA’s time and investments.
• Build the scientific expertise of the IFOPA’s Research Committee and support their input on and oversight of the IFOPA’s research strategy.
• Build relationships and coordinate expert advice from academic, clinical, and industry partners from around the world.
• Oversee expansion and utilization of FOP research tools, such as the Biobank and FOP Registry, to further the IFOPA’s ability to provide high-quality, easily accessible real-world evidence and patient insight.
• Work with industry to responsibly support ongoing and future clinical trials and regulatory review in the best interests of the FOP community.
• Manage the IFOPA's international research grant portfolio, including funding priorities, application, review and selection, contracting, evaluation, and publication.
• Develop strategies to enhance scientific collaboration and synergy in FOP research, including organizing the FOP Drug Development Forum every other year.
• Serve as a spokesperson for the IFOPA’s research strategy and programs to donors, academia, industry and the public.
• Supervise the Real-World Evidence Manager.
  
  
  

Skills And Qualifications

• At least 5 years of related experience in research program management in a nonprofit patient advocacy organization or advancing drug programs in industry
• Hold a BS or graduate studies degree in biomedical sciences; Masters, PhD, or MD preferred
• Minimum 3 years of direct supervisory/management experience
• Creative thinker to advance research and development efforts for the IFOPA
• Prior success managing collaborations with industry, academia, and nonprofits
• Experience in the design and implementation of clinical and/or translational research and epidemiologic studies
• Experience soliciting applicants and distributing and managing a research grant portfolio
• Excellent communication and interpersonal skills
• Efficiently manage multiple projects with competing priorities
• Demonstrated success working independently or cross-functionally with other team members, Board, and committee members
• Ability to work well in a team environment and independently in a virtual setting
• Thrive in a fast-paced, dynamic environment
• Willingness to work flexible hours and travel as requested
• Comfortable with web-based project management tools and collaboration technologies
• Proficient in Microsoft Office (Word, Excel, and PowerPoint) and Google Workspace
  
  
  

Salary Range and Benefits: The salary range for this position is $125,000-$140,000, depending on experience. The IFOPA provides a generous contribution to health insurance (or employees may opt for a medical waiver allowance if otherwise insured). The IFOPA provides dental and vision insurance, short-term and long-term disability, parental leave, a generous PTO policy, and paid holidays. A stipend is provided for the purchase of home office equipment and there is a monthly stipend for cell and WIFI service.

The IFOPA provides equal employment opportunities to all employees and applicants for employment and prohibits discrimination and harassment of any type without regard to race, color, religion, age, sex, national origin, disability status, genetics, protected veteran status, sexual orientation, gender identity or expression, or any other characteristic protected by federal, state or local laws.

This policy applies to all terms and conditions of employment, including recruiting, hiring, placement, promotion, termination, layoff, recall, transfer, leaves of absence, compensation and training.

Seniority level

• Seniority level

  Director

Employment type

• Employment type

  Full-time

Job function

• Job function

  Research, Analyst, and Information Technology

• Industries

  Internet News

Referrals increase your chances of interviewing at BioSpace by 2x

Sign in to set job alerts for “Research Director” roles.

Santa Monica, CA $80,000.00-$90,000.00 2 months ago

Larkspur, CA $100,000.00-$150,000.00 4 weeks ago

United States $125,000.00-$140,000.00 2 weeks ago

Director, Patient-Centered Research, HEOR - (Remote - US)

United States $80,000.00-$100,000.00 3 weeks ago

Washington, DC $250,000.00-$300,000.00 1 month ago

Research Director or Senior Director, Franchise & Entertainment Insights

Director, Research & Scientific Affairs – California

California, United States $188,800.00-$283,200.00 4 days ago

San Francisco, CA $200,000.00-$240,000.00 1 day ago

United States $100,000.00-$110,000.00 2 weeks ago

Seattle, WA $200,000.00-$240,000.00 1 day ago

Austin, TX $200,000.00-$240,000.00 1 day ago

Atlanta, GA $200,000.00-$240,000.00 1 day ago

Salt Lake City, UT $200,000.00-$240,000.00 1 day ago

Dallas, TX $200,000.00-$240,000.00 1 day ago

United States $144,278.00-$225,289.00 1 week ago

Charlotte, NC $200,000.00-$240,000.00 1 day ago

United States $170,000.00-$230,000.00 1 week ago

Washington, DC $93,300.00-$150,100.00 1 week ago

United States $137,000.00-$193,000.00 1 week ago

United States $150,000.00-$190,000.00 1 day ago

Market Research Director or Senior Director

United States $100,000.00-$150,000.00 1 week ago

Director, BioPharma Data Insights & Analytics (Feasibility) - Remote

United States $165,900.00-$282,200.00 1 week ago

We’re unlocking community knowledge in a new way. Experts add insights directly into each article, started with the help of AI.