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Digital seeks an experienced Fundraising Specialist to develop and execute a diversified fundraising program for Barth syndrome, spanning individuals, major donors, corporate partners, grants, and digital campaigns.
You will translate complex medical information into compelling donor messaging, build a small but global support base, and drive fundraising targets with an entrepreneurial approach.
Company : Digital Job Type : Full Time Philippines
We are seeking an experienced Fundraising Specialist to develop and execute a diversified fundraising program dedicated to improving the lives of individuals and families affected by Barth syndrome, an ultra-rare disease affecting approximately 350 known individuals globally.
We aim to raise funds to support scientific research, advance treatments and a cure, provide resources to affected families, and strengthen the global Barth syndrome community.
The role combines strategic planning with hands-on execution across individual, corporate, institutional, government, and digital fundraising channels.