Motor Neuron Disease Coordinator

University Hospital Southampton NHS FT; Southampton; On-site; GBP 42,000 - 54,000; Full time

Job summary

University Hospital Southampton NHS Foundation Trust is seeking a Band 7 Allied Health Professional to coordinate Motor Neurone Disease care. You will manage a clinical caseload, act as a key contact for patients and families, and participate in regional MND clinics and MDT meetings.

You will contribute to the MND improvement plan, support NICE audits, and provide teaching opportunities. This fixed‑term 24‑month role offers support from the MND Lead Coordinator and regional colleagues.

Qualifications

• HCPC registration is essential.
• Degree in an allied health profession is required.
• Masters level or equivalent post‑graduate training in a defined speciality.
• Evidence of commitment to ongoing training and development.

Responsibilities

• Hold a clinical caseload of MND patients within the Care Centre.
• Act as a single point of contact for patients and families.
• Deliver post-diagnostic support and referrals to the MDT.
• Attend specialist regional MND clinics and MDTs.
• Contribute to service objectives and NICE audits.
• Provide MND training and support to colleagues.

Skills

MND care expertise

Clinical leadership

Team collaboration

Teaching/training

Education

HCPC registration

Degree in relevant AHP field

Masters or equivalent post‑grad

Commitment to ongoing training

Job description

Job Overview

University Hospital Southampton NHS Foundation Trust is delighted to offer a fantastic opportunity to work with us.

Job Title: Motor Neuron Disease Coordinator

Contract Type: Fixed Term

Contract Length: 24 months

Purpose for Fixed Term: Short term funding

Main duties of the job: This is an exciting opportunity to join our team for a unique opportunity as a Band 7 allied health professional to work within the friendly, supportive Southampton MND Care Centre team. The post holder will work with the existing Band 8 Lead MND Care Centre AHP coordinator. The post holder will work in collaboration with a diverse range of acute, community and third sector colleagues, including neurology, respiratory, nutrition, community therapies, pallia, community nursing and palliative care, across the Wessex Region to support and develop expert MND Care. The successful candidate will hold a caseload specialising in MND, attend specialist MND clinics, participate in the community MND MDT meetings, contribute to the MND improvement and development plan, including audit of the NICE standard and offer informal and formal teaching opportunities relating to MND. The Southampton MND Care has a highly successful partnership model with the MND Association, who continue work to fund part of our well regarded service. This is a unique opportunity to develop and expand your skills in a care coordination role, whilst making a real difference to the care of people living with MND. You will receive supervision and mentorship from both the Lead MND Coordinator and colleagues within the Wessex Neurology Service to develop your skills and expertise within this role.

Working for our organisation

As one of the largest acute teaching Trusts in England, we offer learning and development opportunities to help you achieve the career you aspire to. UHS is rated ‘Good’ by the CQC and in the latest national NHS Staff Survey, we were in the top 10 acute trusts for staff engagement and for staff recommending the hospital as a place to work or receive care.

We support flexible working and will consider requests taking into account the needs of the service. UHS employees are able to access a range of NHS discounts, are entitled to a minimum of 35 days paid holiday (pro rata), and we offer a generous pension scheme.

Southampton is an attractive place to live and work situated on the south coast, with an international airport and direct trains to London. The New Forest National Park and beaches of the Jurassic coast are also right on our doorstep. The city offers living costs 30% lower than London and 17 schools rated outstanding by Ofsted.

We believe that using technology wisely shows strong time management and commitment to innovation. However, personalising your recruitment application to highlight your unique skills and experiences is crucial. Relying too heavily on generic, AI-generated content instead of drawing from your own strengths and accomplishments may lead to your application being rejected if multiple candidates present identical or similar information.

Detailed Job Description And Main Responsibilities

In this role, your key responsibilities will include

• Hold a clinical caseload of MND patients, working with Lead MND Coordinator and the wider regional team to provide supportive care.
• Act as single point of contact for patients with MND and their families within the activities of the Care Centre
• Undertake the established post diagnostic support visit to patients recently diagnosed with MND, offering post diagnostic advice, emotional support, clinical advice relating to NICE guidance and actioning referrals to the wider MDT for ongoing support.
• Attend and offer MND coordination support within the specialist regional MND clinic structure.
• Attend and participate in MND coordinator led MDTs across the region.
• Participate in the MND service objectives and clinical improvement plan, meeting the conditions of the MND Association grant, participating in management review meetings, , participating in the regular NICE audit and taking responsibility for delivery for defined service objectives.
• Represent the MND Coordination Team at relevant meetings.
• Provide MND specific training to colleagues at UHS and the wider regional team, offer advice and support regarding MND care as required.
• Collaborate within the service to support the MND research pathway and Senior MND Research Nurse.

Person specification

Physical requirements of the post

Essential criteria

• Health and physical abilities sufficient for the post (if necessary with reasonable adjustments with respect to the Equality Act/Disability Discrimination Act).

Qualifications / Training Required

Essential criteria

• Current Registration with HCPC.
• Degree or equivalent in relevant AHP profession
• Masters level or evidence of equivalent post‑graduate training in defined speciality.
• Evidence of commitment to relevant ongoing training and development

Desirable criteria

• Clinical supervisory skills course
• Member of relevant professional organisation and relevant specialist groups
• Appraisal training
• Evidence of management qualification/ development e.g. Foundation Management course

Previous or relevant experience necessary

Essential criteria

• Evidence of extensive knowledge and highly specialist expertise in relevant specialist area
• Recent experience working as a clinical specialist in relevant clinical area
• Evidence of ability to act as an expert within a multi-professional team setting.
• Experience of presentations and public speaking.
• Evidence of project planning and audit delivery
• Demonstration of understanding of clinical governance and its implications for service delivery.
• Experience mentoring or supervising students, assistants or junior staff.
• Experience and involvement in student training
• IT and keyboard skills e.g. Microsoft word

Desirable criteria

• Experience of leading or co-ordinating audit or research work.
• Evidence of generic skills required for service development i.e. report writing, policy development and implementation.
• Ability to undertake appraisals and KSF reviews for band 4, 5, and 6 staff.

Special requirements of the post

Essential criteria

• Ability to have a flexible approach to working hours including extended working day as agreed with line manager
• Ability to cover "out of hours" and weekend working occasionally
• Full driving licence and use of vehicle for travel to regional clinics

Trust Values

Essential criteria

• Patient First
• Working Together
• Always Improving