Volunteer: Patient Advocate Associate (PAA)

Volunteermatch; Downey (CA); Remote; USD 30,000 - 60,000; Full time

Job summary

An established nonprofit organization is seeking a Patient Advocate Associate to join their dedicated team. This role offers a unique opportunity to support families facing rare diseases by guiding them through the complex process of genetic sequencing and research services. You will play a pivotal role in ensuring that patients receive the necessary tools and knowledge to understand their conditions. With a commitment to advocacy and community support, this position allows you to make a meaningful impact in the lives of those affected by rare diseases. Join a passionate team and help bring hope to patients in need.

Qualifications

• Experience in patient advocacy and genetic health services.
• Strong communication skills to guide families effectively.

Responsibilities

• Guide families through obtaining genetic sequencing services.
• Ensure HIPAA-compliant data sharing and consent.

Skills

Patient Advocacy

Genetic Sequencing Knowledge

HIPAA Compliance

Communication Skills

Education

Bachelor's Degree in Health Sciences

Relevant Certifications

Job description

The Patient Advocate Associate (PAA) works as part of the Patient Advocacy Team (PAT) at Rare Genomics Institute (RG). A PAA is involved with patients, guiding families through obtaining genetic sequencing and research services. PAAs are trained to provide access and coordination of CLIA-certified Genetic Sequencing and research services, ensuring HIPAA-compliant patient data sharing consent. These families have faced many challenges, and this role offers a meaningful opportunity to support them. Promptly carrying out responsibilities is essential to ensure proper healthcare delivery.

Mission Statement

At RG, we are more than just an organization. We are a community dedicated to helping rare disease patients find hope for a cure. We work alongside patients and their families, providing them with the necessary tools, knowledge, and connections to understand their disease. We believe every patient deserves more out of life.

Description

Rare Genomics Institute (RGI) is a nonprofit organization committed to helping rare disease patients find diagnosis, treatment, and pathways to cures. We provide personalized research projects, access to top medical institutions for genomic sequencing, coordination with clinicians and counselors for interpreting findings, and an online crowdfunding platform for financial support. RGI also promotes rare disease advocacy by fostering an online community and supporting research through grants.

Since 2011, RGI has completed over 300 genetic sequencing projects, helped fund over $3.5 million in genomic sequencing, discovered 8 unique genetic mutations, awarded over $2 million in research grants, and built a community of over 10,000 members. Through volunteers, RGI advances science and healthcare to meet the needs of those affected by rare diseases. Learn more about RGI on our website, Facebook, and Twitter.

CAUSE AREAS

• Community
• Education & Literacy

WHEN

We work with your schedule.

• Weekdays - Daytime and Evening
• Weekends - Daytime and Evening

WHERE

This is a Virtual Opportunity with no fixed address.