Volunteer: Patient Advocate Associate (PAA)

Raregenomics; Downey (CA); Remote; USD 20,000 - 40,000; Full time

Job summary

An innovative nonprofit organization is seeking a passionate Volunteer Patient Advocate Associate to support families navigating the complexities of genetic sequencing and research services. This flexible virtual role requires exceptional communication skills and a detail-oriented approach to assist families effectively. You will work closely with the Patient Advocacy Team, ensuring timely responses and maintaining accurate records. Join a dedicated team that has made significant strides in aiding rare disease patients and contribute to meaningful change in the healthcare landscape. If you are interested in the medical or nonprofit sectors, this opportunity is perfect for you!

Qualifications

• Bachelor’s Degree or expected graduation in a science or health-related field.
• Exceptional communication skills and organized approach.

Responsibilities

• Respond to patient applications and explain services via calls.
• Maintain accurate patient records and respond to emails promptly.

Skills

Communication Skills

Organizational Skills

Detail-oriented

Adaptability

Education

Bachelor’s Degree in Science or Health-related Field

Job description

Join to apply for the Volunteer: Patient Advocate Associate (PAA) role at Rare Genomics Institute.

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About Rare Genomics Institute (RGI)

RGI is a nonprofit dedicated to helping rare disease patients find diagnosis, treatment, and a pathway to a cure. We facilitate genomic sequencing, coordinate with clinicians, and support advocacy and research through grants and community building. Since 2011, RGI has completed over 300 projects, helped fund over $3.5 million in genomic sequencing, and built an online community of over 10,000 members.

Role Overview

The Patient Advocate Associate (PAA) works with the Patient Advocacy Team (PAT) to assist families in navigating genetic sequencing and research services. This virtual role involves helping families through email and phone communication, ensuring timely responses, and maintaining accurate records. It offers flexibility, requiring about 5 hours weekly.

Responsibilities

1. Respond to all incoming patient applications during your "on call" week.
2. Explain RG's services to families via informational calls.
3. Coordinate with PAT to determine appropriate services for each family.
4. Keep patient information updated in your dashboard.
5. BCC the PAT team on all email communications with families and colleagues.
6. Respond promptly to emails, ideally within 3 days.
7. Show understanding and patience during family calls, adapting to each family's needs.
8. Keep families and PAT informed throughout the process.

Qualifications

• Bachelor’s Degree or expected graduation in a science or health-related field.
• Organized, detail-oriented, and willing to take on additional responsibilities.
• Exceptional communication skills.
• Interest or experience in medical, research, or nonprofit sectors.

Additional Details

• Seniority level: Associate
• Employment type: Volunteer
• Job function: Healthcare Provider
• Industries: Civic and Social Organizations, Non-profit Organizations