Senior Patient Engagement Specialist

The Michael J. Fox Foundation for Parkinson's Research; United States; Hybrid; USD 90.000 - 110.000; Vollzeit

Benefits dieser Stelle

Medical insurance 90% premium covered

Dental and vision plans

401(k) with employer contribution

Flexible spending accounts

Paid time off

Zusammenfassung

The Michael J. Fox Foundation for Parkinson’s Research seeks a Senior Patient Engagement Specialist to design and execute patient engagement strategies supporting disease-focused research programs.

The role emphasizes collaboration with patient communities, study teams and external partners to promote equity and inclusive practices in clinical trials. Responsibilities include project management, data interpretation, and policy development while maintaining the Foundation’s brand integrity and

Qualifikationen

• Experience in patient engagement or adjacent/relevant field.
• Experience developing and executing engagement strategies aligned to business objectives.
• Strong interpersonal and communication skills to build relationships with key opinion leaders and external partners.
• Knowledge of healthcare systems, patient-centered care, and regulatory requirements.
• Ability to translate scientific concepts into accessible storytelling and promotional materials.
• Excellent organizational and project management skills with a track record of managing multiple priorities.

Aufgaben

• Strategic input and execution: design and implement patient engagement strategies aligned with goals; identify opportunities to improve involvement.
• Project management: plan, implement and evaluate patient engagement projects delivering measurable outcomes.
• Stakeholder collaboration: build relationships with patient communities, study teams and other stakeholders to support Foundation goals.
• Data analysis and reporting: collect, analyze and present data; prepare reports for internal and external stakeholders.
• Policy and procedure development: contribute to policies/procedures ensuring compliance with regulations.

Kenntnisse

Patient engagement

Strategy development

Stakeholder collaboration

Healthcare knowledge

Science storytelling

Project management

Travel

Jobbeschreibung

Job Title: Senior Patient Engagement Specialist (Research Recruitment)

The Michael J. Fox Foundation for Parkinson’s Research (“the Foundation”) is seeking top talent for its Senior Patient Engagement Specialist position. Reporting to the Director of Patient Engagement, this position at The Michael J. Fox Foundation for Parkinson's Research (“the Foundation”) develops and implements strategies to enhance patient involvement and support patient-centered research. This role will support the Foundation’s flagship clinical research programs. This role includes contributing to Foundation initiatives and advising on external partner practices, with a focus on promoting diversity, equity, and inclusion in Parkinson’s disease clinical research. These efforts aim to deliver accessible and impactful outcomes for the Parkinson’s community, advancing new treatments and improving quality of life. Stewardship of the Foundation’s brand, mission, and donor funds, while balancing diverse stakeholder perspectives, is crucial to this role.

The ideal candidate should have proven experience in clinical research and participant recruitment activities. Experience with research involving genetic screening is a plus.

Key Responsibilities

• Strategic Input and Execution: Design and execute patient engagement strategies that align with the organization’s goals and objectives. Identify opportunities to enhance patient involvement and influence organizational policies and practices
• Project Management: Oversee the planning, implementation, and evaluation of patient engagement projects. Ensure projects are designed to meet the diverse needs of our patient population and deliver measurable outcomes
• Stakeholder Collaboration: Build and maintain strong relationships with patient/participant communities, study teams and other stakeholders; facilitating collaboration toward the Foundation’s goals
• Data Analysis and Reporting: Collect, analyze, and interpret data related to patient engagement activities. Prepare reports and presentations to communicate findings and recommendations to internal and external stakeholders
• Policy and Procedure Development: Contribute to the development and refinement of organizational policies and procedures related to patient engagement. Ensure compliance with relevant regulations and standards

Qualifications And Skills

• Relevant experience in patient engagement or adjacent/relevant field
• Relevant experience developing and executing engagement strategies and plans that support business objectives
• Strong interpersonal and communication skills, with the ability to build relationships and facilitate collaboration with key opinion leaders and valued external partners, including those in patient/participant communities
• Knowledge of healthcare systems, patient-centered care, and relevant regulatory requirements
• Ability to translate scientific and study concepts into compelling, accessible storytelling and promotional materials
• Excellent organizational and project management skills, with a track record of managing multiple priorities and meeting deadlines.
• Travel expectation – 10%

Compensation & Benefits

Individual compensation for this role is dependent on a variety of factors, including, but not limited to, qualifications, skillsets, and applicable laws. In addition to salary, the Foundation offers a comprehensive benefits package, including:

• 15+ options for medical insurance (with the Foundation paying 90 percent of the premiums)
• Competitive dental and vision plans
• 401(k) plan with 6 percent employer contribution
• Flexible spending accounts
• Employer paid life and disability insurance
• 18 Vacation Days; 12 Well-Being (Sick) Days; 2 Personal Days; summer Fridays (office closure at 2pm) and a summer holiday week over July 4
• Flexible work environment. We trust all employees to work closely with their manager and colleagues to determine when, where and how programs and projects get done.

Employees are also eligible for a discretionary bonus on an annual basis. The Foundation provides staff and leadership cultivation through regular training courses and events.

Salary Range

$90,000 - $110,000 USD

About Us

The Michael J. Fox Foundation for Parkinson’s Research was founded in 2000 with one clear objective: accelerating meaningful therapeutic advances and, ultimately, a cure for Parkinson’s disease (PD). The Foundation applies extraordinary scientific, business and media assets to this singular focus—thus creating a unique and dynamic organization. Since inception, MJFF has quickly grown into the largest nonprofit funder of Parkinson’s disease research, having funded over $2 billion in research projects in both academic and industry labs worldwide.

Visit www.michaeljfox.org for more information.

Research has shown that people from marginalized communities apply to roles only when they meet 100% of the job requirements. If you think that your skills are transferable and can add value to this role, and you are someone who will contribute to our efforts to build and support a diverse, equitable and inclusive workforce, we strongly encourage you to apply.