Director, Patient-Centered Research, HEOR - Remote

Society for Conservation Biology; California (MO); Remote; USD 100,000 - 125,000; Full time

Job description

Director, Patient-Centered Research, HEOR - Remote

Employer: Agios Pharmaceuticals | Location: Hayes Valley, California, US | Salary: Competitive | Closing date: May 20, 2025

Sector: Academic / Research | Field: Conservation science | Discipline: Economics | Job Level: Senior | Employment Type: Full time

Who we are:

Agios is a biopharmaceutical company committed to impactful work in a supportive, flexible environment. We focus on therapies for rare diseases, including a first-in-class treatment for hemolytic anemia and a pipeline in various hematologic conditions.

The impact you will make:

We seek a dynamic Director of Patient-Centered Research to lead our HEOR team, focusing on clinical development support and real-world evidence generation, essential for regulatory and market access activities.

What you will do:

1. Design and conduct research incorporating patient perspectives to support regulatory approval and market access.
2. Understand patient experiences and outcomes that matter most, including symptoms and treatment effects.
3. Develop and validate patient-reported measures in line with FDA and EMA guidance.
4. Collaborate on COA endpoint strategy and contribute to regulatory documentation and submissions.
5. Lead publication and presentation of research findings.
6. Support additional evidence generation activities and manage vendor relationships.
7. Maintain communication with internal teams and ensure compliance with regulations.

What you bring:

• Master's or doctoral degree in relevant fields.
• At least 10 years in pharma/biotech or academia, with 8+ years in patient-centered research.
• Expertise in designing and interpreting patient-centered research and familiarity with regulatory guidance.
• Strong project management, communication, and stakeholder engagement skills.
• Experience in rare diseases is preferred but not required.
• Willingness to travel 10-15% of the time.

We encourage applicants even if they don't meet every requirement, valuing diversity and unique experiences. Join us in making a difference.

Work Location:

Flexible: Remote in the US or hybrid at our Cambridge headquarters. Hybrid schedules are generally less than 3 days onsite. Remote employees may travel for company events.

What we will give you:

• Professional growth opportunities.
• Flexible work arrangements.
• Comprehensive benefits and competitive compensation.
• Salary range: $178,203 - $267,305, based on experience and qualifications.
• A supportive environment fostering psychological safety, diversity, and community engagement.

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