Head of Patient Advocacy

Myeloma UK; United Kingdom; Hybrid; GBP 70,000 - 100,000; Full time

Benefits offered by this job

Pension salary exchange scheme

Flexitime

Flexible working from home

Job summary

Myeloma UK is seeking a Head of Patient Advocacy to lead our policy and advocacy programme. The role drives the delivery of policy outputs supporting diagnosis, access to treatment and living well with myeloma.

You will design advocacy research projects, develop evidence-based policy papers, and work closely with Lived Experience and Clinical Practice Services to inform strategic objectives. Strong leadership and collaboration are essential.

Qualifications

• Senior-level advocacy/policy experience.
• Ability to develop a strategic approach to policy and advocacy.
• Excellent verbal and written communication skills.

Responsibilities

• Design and deliver advocacy research projects.
• Develop and deliver policy position papers aligned with strategic objectives.
• Engage with Government, NHS, industry and HTA policy consultations.

Skills

Strategic leadership

Policy advocacy

Stakeholder engagement

HTA submissions

Job description

Disclaimer: Whilst we always aim to provide accurate information, Recite Me uses machine translation so the translation may not be perfect and we can't guarantee its accuracy. Myeloma UK accepts no liability for any inaccuracies resulting from the use of this translation tool. The information provided is not meant to replace the advice of your healthcare team. Find out more about this tool at reciteme.com

Head of Patient Advocacy Job Description

Do you want to lead our policy and advocacy programme ensuring the patient voice counts with decision makers? We are looking for an exceptional leader with vision and drive to manage the delivery of policy outputs supporting the delivery of Myeloma UK's strategic objectives including diagnosis, access to treatment and living well with myeloma.

You will have the ability to motivate a team and lead on delivery of our participation in submissions to UK Health Technology Assessments (HTAs) relevant to myeloma and related conditions as well as lead on external stakeholder engagement with key policy and clinical decision makers in cancer and myeloma treatment and care.

The successful candidate will have experience in an advocacy/policy role at a senior level together with experience developing a strategic approach to policy and advocacy, building relationships with key stakeholders and knowledge of the UK health policy landscape.

Strong management and leadership skills with excellent verbal and written communication skills, including the ability to present to a broad variety of audiences is essential. Experience of the cancer policy, treatment and access landscape would be beneficial.

About the role

This is an exciting opportunity for the post holder to lead Myeloma UK's work to make the patient voice count with decision makers. As a Head of Patient Advocacy, you will design and deliver advocacy research projects, develop and deliver a programme of evidence-based policy position papers in line with strategic objectives, while working closely with colleagues in Lived Experience and Clinical Practice Services and Health Services Research.

You will lead on engagement with and responses to relevant UK and devolved nations Government, NHS, industry and HTA policy consultations, including UK Life Sciences and national cancer strategies while working with the Head of Brand Strategy, to engage with elected members in the UK and devolved Governments and legislatures.

The role holder will develop effective working partnerships with policy and advocacy functions in other third sector organisations and represent Myeloma UK on relevant coalitions and working groups

About us

Myeloma UK is the only UK charity focused on the incurable blood cancer, myeloma and its related conditions. We provide support and influence access to treatments, while researching a cure. Thanks to life-extending treatments and support, today many people affected by myeloma are able to live longer and to live well.

We are committed to bringing together the best and brightest people to help us ensure that every person affected by myeloma has an empowered present and a hopeful future.

Our ultimate goal is to find a cure and make myeloma history. Until then, our mission is to help every person living with myeloma, live well, for as long as possible. We are committed to diagnosing myeloma earlier, discovering and sharing knowledge, transforming the patient experience and influencing positive change.

Our culture

Wellbeing and staff engagement are at the heart of our culture. We offer our employees a range of benefits including a pension salary exchange scheme, flexitime, flexible working from home with hub-based office working, health plan, employee assistance plan and holiday purchase scheme and we are committed to providing learning and development opportunities for all our employees.

Applications close at 9am on Monday 23 November. First interviews will be held w/c 7 December and second interviews are likely to be held w/c 14 December.

Myeloma UK is an equal opportunities employer and always welcomes applications from suitably qualified and eligible candidates.

Please note, you will be asked to provide evidence of your eligibility to work in the UK prior to interview selection. Unfortunately we are not able to provide sponsorship to work in the UK.

The Association of Medical Research Charities (AMRC) is dedicated to helping medical research charities save and improve lives through research and innovation.

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