Data Manager and Analyst - Haemoglobinopathy | University Hospitals of Leicester NHS Trust

University Hospitals of Leicester; Leicester; Presencial; GBP 42.000 - 56.000; Jornada completa

Descripción de la vacante

University Hospitals of Leicester NHS Trust is seeking a Data Manager and Analyst for Haemoglobinopathy to lead the management, quality, and development of specialist patient data systems, ensuring accurate information supports patient care, national reporting, and service improvement.

You will work with clinical teams and national partners to drive data quality, oversee National Haemoglobinopathy Registry submissions, support digital system implementation, and provide KPIs for decision-making

Responsabilidades

• Lead the operational management, development and quality assurance of local and national haemoglobinopathy data systems.
• Act as the main system administrator, super-user and specialist contact for the National Haemoglobinopathy Registry (MDSAS).
• Ensure accurate, complete and timely collection of patient, diagnosis, treatment, activity and outcome information.
• Register eligible patients, maintain patient alerts, and drive data-quality assurance activities.
• Investigate and resolve data discrepancies and drive continuous improvements in data accuracy and timeliness.
• Develop and manage databases, datasets, dashboards and reports to support MDT meetings, governance and service planning.
• Coordinate and validate submissions to the National Haemoglobinopathy Registry, SSQD, NHS England specialised services collections and other national reporting systems.

Descripción del empleo

Data Manager and Analyst - Haemoglobinopathy | University Hospitals of Leicester NHS Trust

As the Data Manager and Analyst for Haemoglobinopathy, you will lead the management, quality, and development of specialist patient data systems, ensuring accurate and timely information supports outstanding patient care, national reporting, and service improvement. Working closely with clinical teams and national partners, you'll drive data quality, oversee National Haemoglobinopathy Registry submissions, support digital system implementation, and provide key performance insights that inform decision-making and shape future services. This is an excellent opportunity for a data professional who enjoys combining analytical expertise, system management, and healthcare impact in a highly specialised and rewarding role.

The Data Manager and Analyst for Haemoglobinopathy is responsible for the operational management, development, quality assurance and use of local and national haemoglobinopathy data systems.

The post holder ensures that accurate, complete and timely patient data is available to support safe clinical care, national reporting, governance, service planning and decision-making.

The post holder contributes to the safe implementation and ongoing use of digital systems through system administration, testing, data-quality assurance, clinical-safety support, business-continuity planning, and user training and supplier liaison. They are responsible for the Trust’s requirements for the National Haemoglobinopathy Registry data submissions as well as ensuring Key Performance Indicator data is available for reporting purposes, such as SSQD and annual reports.

Our new strategy, developed with the support and feedback of colleagues, patients, and partners, is our compass for the next seven years (2023-2030).

We have four primary goals:

• high-quality care for all,
• being a great place to work,
• partnerships for impact,
• research and education excellence

And we will embed health equality in all we do - taking active steps to reduce the avoidable differences in healthcare that some people face, working in partnership with communities.

Our strategy is underpinned by new values and we will work to ensure they are an everyday reality for all:

• we are compassionate,
• we are proud,
• we are inclusive,
• we are one team

This is an exciting moment as we look to the future with clarity on what we already do well and where we need to focus our energies to make an even bigger difference for the people we serve.

About the University Hospitals of Leicester NHS Trust:

Summary: Service Delivery and Development

The Data Manager and Analyst for Haemoglobinopathy provides operational leadership for haemoglobinopathy data systems, acting as the main system administrator, super-user, and specialist point of contact for the MDSAS National Haemoglobinopathy Registry. The role is responsible for maintaining high-quality local and national datasets, ensuring accurate, complete, and timely collection of patient, diagnosis, treatment, activity, and outcome information to support patient care, service delivery, and national reporting requirements.

Key responsibilities include registering eligible patients, maintaining patient alerts, leading data-quality assurance activities, investigating and resolving data discrepancies, and driving continuous improvements in data accuracy, completeness, and timeliness. The post holder develops and manages databases, datasets, dashboards, reports, and data visualisations to support multidisciplinary team meetings, clinical governance, service monitoring, operational planning, and decision-making.

The role produces regular and ad hoc reports, analyses complex information, and presents findings in a clear and meaningful way to highlight trends, risks, opportunities, and areas for service improvement. It also coordinates and validates submissions to the National Haemoglobinopathy Registry, Specialised Services Quality Dashboards (SSQD), NHS England specialised services collections, and other national reporting systems, ensuring compliance with reporting requirements and deadlines.

In addition, the post holder supports clinical audits, service evaluations, business cases, commissioner requests, external audits, and Freedom of Information responses by providing validated data and intelligence in line with information governance standards. They hold overall responsibility for annual review submissions to the National Haemoglobinopathy Registry, support data management activities across the regional network, and provide leadership and guidance to staff responsible for haemoglobinopathy data management within the East Midlands Sickle Cell and Thalassaemia Network.

KEY WORKING RELATIONSHIPS

Internal

• UHL and network consultant haematologists
• Lead and specialist haemoglobinopathy nurses
• Psychology and wider multidisciplinary team
• Service Managers, General Manager and clinical management
• Digital Services, Information Governance and Clinical Safety teams
• Outcomes, Effectiveness, Audit and Quality teams

External

• MDSAS and National Haemoglobinopathy Registry
• NHS England and specialised services reporting teams
• Other haemoglobinopathy centres and regional MDT partners
• Relevant external auditors, commissioners and stakeholders

This advert closes on Thursday 19 Nov 2026