Data Manager and Analyst - Haemoglobinopathy

NHS Jobs; Leicester; On-site; GBP 40,000 - 50,000; Full time

Job summary

NHS Jobs is seeking a Data Manager and Analyst for Haemoglobinopathy to lead operational data systems, act as system administrator for the MDSAS National Haemoglobinopathy Registry, and ensure timely, accurate national reporting to support patient care and service delivery.

The role develops and manages datasets, dashboards, and reports, supporting MDT meetings, governance, and planning, while coordinating submissions and audits across the regional network and national reporting systems.

Job description

Data Manager and Analyst - Haemoglobinopathy

Summary: Service Delivery and Development The Data Manager and Analyst for Haemoglobinopathy provides operational leadership for haemoglobinopathy data systems, acting as the main system administrator, super-user, and specialist point of contact for the MDSAS National Haemoglobinopathy Registry. The role is responsible for maintaining high-quality local and national datasets, ensuring accurate, complete, and timely collection of patient, diagnosis, treatment, activity, and outcome information to support patient care, service delivery, and national reporting requirements. Key responsibilities include registering eligible patients, maintaining patient alerts, leading data-quality assurance activities, investigating and resolving data discrepancies, and driving continuous improvements in data accuracy, completeness, and timeliness. The post holder develops and manages databases, datasets, dashboards, reports, and data visualisations to support multidisciplinary team meetings, clinical governance, service monitoring, operational planning, and decision-making. The role produces regular and ad hoc reports, analyses complex information, and presents findings in a clear and meaningful way to highlight trends, risks, opportunities, and areas for service improvement. It also coordinates and validates submissions to the National Haemoglobinopathy Registry, Specialised Services Quality Dashboards (SSQD), NHS England specialised services collections, and other national reporting systems, ensuring compliance with reporting requirements and deadlines. In addition, the post holder supports clinical audits, service evaluations, business cases, commissioner requests, external audits, and Freedom of Information responses by providing validated data and intelligence in line with information governance standards. They hold overall responsibility for annual review submissions to the National Haemoglobinopathy Registry, support data management activities across the regional network, and provide leadership and guidance to staff responsible for haemoglobinopathy data management within the East Midlands Sickle Cell and Thalassaemia Network.

KEY WORKING RELATIONSHIPS

Internal UHL and network consultant haematologists Lead and specialist haemoglobinopathy nurses Psychology and wider multidisciplinary team Service Managers, General Manager and clinical management Digital Services, Information Governance and Clinical Safety teams Outcomes, Effectiveness, Audit and Quality teams Service users External MDSAS and National Haemoglobinopathy Registry West Midlands Thalassaemia Network NHS England and specialised services reporting teams Other haemoglobinopathy centres and regional MDT partners Relevant external auditors, commissioners and stakeholders