Clinical Nurse Specialist, Paediatric Haemophilia

University Hospitals Coventry and Warwickshire NHS Trust; Coventry; On-site; GBP 47,000 - 55,000; Part time

Job summary

A healthcare organization in the UK is seeking a part-time Specialist Nurse to join their haemophilia service. The successful candidate will provide expert nursing care for patients across all ages, collaborating with healthcare teams to ensure seamless service delivery. This role involves leading home treatment initiatives and facilitating education and training within the team. A nursing qualification and clinical experience with bleeding disorders are essential.

Qualifications

• Experience in managing patients with haemophilia and bleeding disorders.
• Ability to work autonomously and make high-level clinical decisions.
• Strong understanding of multidisciplinary teamwork.

Responsibilities

• Deliver expert nursing care across the lifespan for patients with bleeding disorders.
• Liaise with healthcare professionals to ensure seamless care.
• Lead the development of home treatment and community outreach services.

Skills

Clinical assessment

Communication

Leadership

Education

Relevant nursing qualification

Job description

Overview

An exciting opportunity has arisen to join our established haemophilia service, working jointly with the adult and child services for our patients with haemophilia and inherited bleeding disorders, providing expert nursing care across their lifespan - from pre-birth to end of life care, this includes adults with immune thrombocytopenia (ITP). The Paediatric nurse works in partnership with the adult haemophilia nurses to ensure a seamless haemophilia service which offers advice and guidance to patients, carers and other health care professionals for both children and adults.

The post holder will deliver a comprehensive, highly specialist service to patients and families affected by bleeding disorders, offering clinical expertise, emotional support, and practical guidance throughout their healthcare journey. This includes antenatal counselling, paediatric management, transition planning, and ongoing adult care, ensuring a seamless and coordinated service across all stages of life.

Autonomous in practice and confident in making high-level clinical decisions, the post holder will assess, plan, and implement specialist care tailored to individual needs. They will act as a key worker, liaising with haematology consultants, community teams, and other healthcare professionals to provide holistic, patient-centred care.

Successful applicants will be required to provide an immunisation and vaccination report, from either their current UK occupational health provider or their UK GP.

Main duties of the job

The role includes shared responsibility with the adult haemophilia nurse specialist, ensuring integrated service delivery and cross-cover where needed. The post holder will also lead on the development of a home treatment and community outreach service, supporting patients and families in managing care outside the hospital setting.

In addition to clinical duties, the post holder will provide specialist leadership in education, training, research, and audit within the field of inherited bleeding disorders and ITP. They will serve as an expert resource for colleagues across the Trust, helping to shape the future of the haemophilia and ITP service through innovation, collaboration, and compassionate care.

The post holder must have the ability to work autonomously and manage a clinical workload. They will be expected to provide specialist clinical leadership within this area of care and to lead and develop education, training, research and audit relevant to the field.

The post holder will act as the key worker and will liaise with other healthcare professionals in order to provide the best possible specialist care for their patients, ensuring co-ordination and continuity of care for the ongoing management of this patient group.

About us

We are extremely proud of our employees across our hospital sites, with high quality patient care at the heart of everything we do.

Boasting some of the most modern facilities in Western Europe, the Trust is renowned for being at the forefront of research and innovation as part of its blossoming reputation as a worldwide leader in healthcare.

We are proud to be recognised as a Pathway to Excellence designated organisation - please click the link for further details about this prestigious award. Pathway To Excellence - University Hospitals Coventry & Warwickshire (uhcw.nhs.uk)

By joining our exciting journey, you will form part of a passionate, talented team and will be able to access a wide range of learning and development opportunities. There has never been a better time to join our team.

The Trust is committed to building an organisation that makes full use of the talents, skills, experience, and different perspectives available in our diverse society. We want everyone to feel they are respected, valued, can achieve their potential and receive the most appropriate and relevant care. We will create an environment where the equality and human rights principles of fairness, respect, equality, dignity and autonomy are promoted and are part of the organisation's core values.

Job responsibilities

The post holder will act as an expert resource, collaborating provide specialist nursing knowledge and expertise on all aspects of inherited bleeding disorders.

The post holder will be responsible for the development of a home treatment service, including delivery of haemophilia care in the community, and will have a major role in the future development of the UHCW haemophilia service as it evolves.

• Facilitate the co-ordination the care of patients throughout the care pathway with the multidisciplinary team and clinical services to ensure the effective management of this group of patients.
• Demonstrate advanced practice in clinical and holistic assessment, planning, implementation, and evaluation of patients requiring care to ensure that optimum physical and psychological care needs are met.
• Act as a role model in the delivery of care to Haemophilia and Bleeding Disorder Patients. Including assessment, planning and delivery of care in emergency departments and follow up support demonstrating high standards of holistic care and providing clinical leadership.
• Highly developed communication skills enabling maintenance of high-quality service and ensuring timely management and resolution of unexpected events and situations.
• Create a climate in which patients and carers are empowered to make informed choices about their health and treatment options and act as an advocate for the patient/carer.
• Provide and maintain expert knowledge and practice in clinical skills such as venepuncture, peripheral venous cannulation, and management of central venous access devices.
• An expert resource for staff, advising on national, local and Trust policy and procedures/guidelines in line with the National Service Specification for Haemophilia and related bleeding disorders, ensuring that clinical governance is embedded in practice.
• Co-ordinate referrals to Specialist Services, including genetic counselling, carrier detection and Obstetrics.
• To devise and deliver specialist information related to the condition to patients and carers. This will include teaching patients and their carers to venepuncture, give subcutaneous injections, access central venous lines and ports and administer clotting factors, with the aim to empower them to manage their condition.
• To record all patient related work to ensure this is commissioned correctly and is accurate and up to date.
• To manage and maintain the UHCW NHS Trust stocks of Factor Concentrates.
• To participate in haemophilia medications and blood components.

For further details of the role please see the attached job description.

Person Specification

Qualifications & Training

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Experience

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Knowledge

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Skills & Abilities

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Commitment to Trust Values and Behaviours

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Disclosure and Barring Service Check

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and as such it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service (formerly known as CRB) to check for any previous criminal convictions.

University Hospitals Coventry and Warwickshire NHS Trust

Address

University Hospital Coventry and Warwickshire

£47,810 to £54,710 a year per annum pro rata

Contract

Permanent

Working pattern

Part-time

Reference number

218-NM-B7-7494904

Job locations

University Hospital Coventry and Warwickshire