Life Course Working Group

EACD National Coordinators; France; À distance; EUR 40 000 - 60 000; Plein temps

Description du poste

To provide strategic advice, counsel, and options to the EACD General Management Committee on how to adopt and integrate a life course approach within EACD.

Objectives of Working Group

To anchor a Life Course approach within EACD’s actions and activities to serve needs in this area, the work group is expected to advice the GMC on the following three key questions:

• How can EACD contribute to the acceleration of dissemination of known knowledge on the life course of diverse childhood-onset developmental disabilities ? And whom are we trying to reach?
• How can EACD identify goals and priorities for further knowledge creation to better understand the life course of diverse childhood-onset developmental disabilities? What structures are needed, for example to facilitate active collaboration and/or to promote new research initiatives?
• How could the lack of existent service models, and the large knowledge gap in adult service providers in particular be addressed in the European region? H ow do we put EACD in the forefront of a change from pediatric focus to life course perspectives?

Members

Co-Lead

Emma Livingstone , SLT, PWLE

UP - The Adult Cerebral Palsy Movement
UNITED KINGDOM

Member

Royal College of Surgeons in Ireland (RCSI)
IRELAND

Member

Oslo University Hospital
NORWAY

Member

Mark Peterson , MD , PhD
University of Michigan
MI, USA

Member

William Sherlaw , PWLE
FRANCE

Co-Lead

Lund University & Uppsala University
SWEDEN

Member

THE NETHERLANDS

Member

EACD Families & Users' Forum Coordinator
ARMENIA

Member

Alain Chatelin , PWLE , PhD
FRANCE

Member

CHU Brest
FRANCE

Background

In respect to the improved survival into adulthood for most childhood-onset disabling conditions and the different concerns and challenges this brings, t here is a growing acknowledgement that what we plan for, do or not do, today influences the life course and future life chances of people with childhood-onset disabilities of all ages over their entire lifespan. However, there is a lack of existent service models, and a large knowledge gap, particularly in adult service providers. This brings a number of concern and challenges which need to be considered. As such, there is now among other a need for (i) Data to better to understand life course of diverse childhood-onset developmental disabilities; (ii) Acceleration in the dissemination of known knowledge; (iii) Development of further knowledge by active collaboration and promoting research. Therefore, the EACD GMC installed in May 2022 a Life Course Working Group to provide strategic advice, counsel, and options to the EACD General Management Committee on how to adopt and integrate a life course approach within EACD.

Accountability

The EACD Life Course Working Group is accountable to the EACD General Management Committee for the stated duties and responsibilities.

The European Academy of Childhood-onset Disability (EACD) i s an international not-for-profit association founded in 1989, and is an association for anyone with a clinical and/or scientific interest in childhood-onset disabilities in Europe and beyond. EACD's mission is to promote research and education for the benefit of people with childhood-onset disabilitiesthroughout Europe and beyond .