Remote Data Governance & Privacy Policy Lead

Move Concierge; Washington (District of Columbia); Remote; USD 172,000 - 186,000; Full time

Job summary

Mind Moves is seeking a data governance and privacy subject matter expert for a six-month NIH project to develop privacy-preserving synthetic data modeled on dbGaP. You will translate consent and data-use terms into implementable technical controls and collaborate with NIH stakeholders.

You will define governance criteria, assess residual disclosure risks, and document decisions with the technical team, ensuring compliance while enabling scientific use in a mission-driven environment.

Qualifications

• Demonstrated experience governing sensitive or controlled-access data.
• Ability to translate policy and regulatory requirements into technical specifications.
• Understanding of privacy, disclosure risk, and data-use controls.

Responsibilities

• Lead governance framework design and acceptance criteria for a governed-access prototype.
• Translate consent conditions and DUC/DUA terms into permissions and rules.
• Define evaluation criteria for synthetic data privacy and disclosure risk.
• Collaborate with NIH staff and Mind Moves team to resolve governance questions.
• Document decisions and requirements for auditability and compliance.

Skills

Data governance

Policy translation

Privacy protection

Security & compliance

Stakeholder engagement

Technical collaboration

Tools

GA4GH DUO

Job description

Mind Moves is seeking a data governance and privacy subject matter expert for a six-month NIH project to develop privacy-preserving synthetic data modeled on dbGaP. You will translate consent and data-use terms into implementable technical controls and collaborate with NIH stakeholders.

You will define governance criteria, assess residual disclosure risks, and document decisions with the technical team, ensuring compliance while enabling scientific use in a mission-driven environment.