Pompe Disease News columnist

Bionews, Inc.; Pensacola (FL); Remote; USD 10,000 - 60,000; Part time

Job summary

Bionews, Inc. is seeking a Pompe Disease News columnist to provide personal insights through writing about life with Pompe disease. The role includes adhering to weekly deadlines and requires individuals from the Pompe disease community to apply, whether patients or caregivers.

Qualifications

• Experience writing for an audience.
• At least three months with Pompe disease or caregiving experience.

Responsibilities

• Fulfill 1x weekly deadlines as agreed.
• Submit 400-800 word drafts following Bionews policies.

Skills

Creative writing

Time management

Internet technology

Tools

WordPress

Slack

Job description

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Join to apply for the Pompe Disease News columnist role at Bionews, Inc.

Job Opening Details

Bionews, a digital news company dedicated to creating communities for patients with rare and chronic diseases and their caregivers, is looking for members of the Pompe disease community to join our freelance staff of patient and caregiver columnists on

Pompe Disease News.

A Bionews columnist is a patient or caregiver who shares about life with a rare or chronic disease. They write personal essays in a column format to inform, inspire, empathize, and advise. Their audience includes patients, caregivers, medical teams, and researchers. Columnists also write to a general audience interested in learning how to improve society's understanding and treatment of disease/disability communities.

Job Opening Details

Bionews, a digital news company dedicated to creating communities for patients with rare and chronic diseases and their caregivers, is looking for members of the Pompe disease community to join our freelance staff of patient and caregiver columnists on Pompe Disease News.

A Bionews columnist is a patient or caregiver who shares about life with a rare or chronic disease. They write personal essays in a column format to inform, inspire, empathize, and advise. Their audience includes patients, caregivers, medical teams, and researchers. Columnists also write to a general audience interested in learning how to improve society's understanding and treatment of disease/disability communities.

All columns are reviewed with a critical eye by professional editors who will work with columnists to smooth rough spots and help the columnist grow as a writer. This is a contract position.

Please note you MUST be a member of the Pompe disease community in order to apply for this position -- patient preferred, but caregivers may apply for consideration.

Responsibilities And Duties

• Fulfill 1x weekly deadlines as agreed upon on hire.
• Communicate efficiently with your managers and editors.
• Submit 400-800 word drafts that adhere to Bionews policies and procedures.
• Aside from exceptions, drafts should not take more than 45 minutes to edit.
• Fulfill revisions as requested by editors in a timely manner.
• Complete training assigned by Bionews HR.
  
  

Experience Required

• Prior experience with writing for an audience.
• At least three months’ direct experience with having or caring for someone with Pompe disease.
• Caregivers must be direct relatives, guardians, or spouses.
  
  

Experience Preferred

• Experience in being professionally edited for publication.
• Experienced in generating a blog or column.
• Participation in support groups, internet forums, or community groups relevant to Pompe disease.
  
  

Knowledge Required

• Fundamentals of how Pompe disease works.
  
  

Knowledge Preferred

• The content needs or wants of the Pompe disease community.
  
  

Skills Required

• A swift and independent learner of Internet technology.
• A creative mind capable of regularly generating unique content that appeals to target audiences.
• Time management.
• Advanced creative writing.
  
  

Skills Preferred

• Experience in using WordPress for content creation.
• Experience with the Slack communication app.
  
  

Abilities Required

• Internet access and use.
• Native or fluent English writing and reading abilities.
  
  

Who is Bionews?

Bionews is a leading online health, science, publication, and research company with one purpose: to serve patients with a rare or chronic disease. We do this by connecting them with current, trusted, and relevant news and information. This content is delivered regularly and provided by actual patients as well as professional journalists, writers, editors, scientists, and experienced media executives. Our end customers are truly patients living with rare and chronic diseases. Visit www.bionews.com for more information.

Bionews Vision

To empower, inspire, and champion the patient voice as the preeminent resource that engages, informs, and connects the global rare and chronic disease community.

Bionews Purpose

We connect rare and chronic disease communities by providing a unified and distinctive space to engage, educate, and empower those affected by rare diseases to help improve patient health and quality of life.

Values: R.A.R.E.

• RESPONSIBILITY
• ADVOCACY
• RELATIONSHIPS
• EMPOWERMENT

Seniority level

• Seniority level

  Entry level

Employment type

• Employment type

  Contract

Job function

• Job function

  Marketing, Public Relations, and Writing/Editing

• Industries

  Technology, Information and Internet

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