Pediatric Clinical Research Coordinator — Rare Diseases

Boston Children’s Hospital; Boston (MA); On-site; USD 55,000 - 75,000; Full time

Benefits offered by this job

Flexible schedules

Health insurance

Vision and dental insurance

Child care subsidies

Retirement plan (403(b))

Tuition reimbursement

Discounted commuter benefits

Job summary

Boston Children's Hospital seeks a Clinical Research Assistant to manage day-to-day operations of a natural history study in rare childhood-onset neurological diseases. You will recruit patients, coordinate visits, handle logistics, and ensure regulatory compliance, working directly with patients and families.

The role involves travel and weekend events, with an emphasis on data collection in REDCap and collaboration with researchers and advocacy groups.

Qualifications

• Bachelor's degree in neuroscience, biology, psychology, public health, or a related field is required.
• 0-1 years of experience in clinical research or a healthcare setting is preferred.
• Experience with informed consent, IRB submissions, REDCap or Epic, research contracts or budgets, and working with pediatric patients or patient advocacy organizations.

Responsibilities

• Recruit and consent patients and families, and serve as their main point of contact throughout the study.
• Schedule and coordinate study visits, including clinical assessments and biospecimen collection.
• Manage study logistics, including participant travel and reimbursement, sample processing, and shipping.
• Prepare and submit IRB protocols, amendments, and continuing reviews, and maintain regulatory documentation.
• Manage study contracts, agreements, and budgets in collaboration with institutional offices.
• Collect and manage study data in REDCap, and represent the study at patient and family conferences.

Skills

Organizational skills

Communication skills

Patient interaction

Education

Bachelor's degree in neuroscience, biology, psychology, public health, or related field

Job description

Boston Children's Hospital seeks a Clinical Research Assistant to manage day-to-day operations of a natural history study in rare childhood-onset neurological diseases. You will recruit patients, coordinate visits, handle logistics, and ensure regulatory compliance, working directly with patients and families.

The role involves travel and weekend events, with an emphasis on data collection in REDCap and collaboration with researchers and advocacy groups.