Nurse Navigator for Rare Neurogenetic Disorders II

Washington University in St. Louis; Ann Arbor (MI); On-site; USD 60,000 - 80,000; Full time

Job summary

Washington University in St. Louis is seeking a Nurse Coordinator to manage care for patients with rare neurologic, genetic, and neurodevelopmental disorders, including Angelman Syndrome, Tuberous Sclerosis Complex, and leukodystrophies.

The role places you as the primary family contact and part of multidisciplinary clinics. You will coordinate care plans, referrals, diagnostic testing, and follow-up across internal and external providers, and support families navigating healthcare, education,

Responsibilities

• Care coordination for patients with rare neurologic, genetic, and neurodevelopmental disorders; serve as primary family contact.
• Coordinate multidisciplinary care plans, referrals, tests, and follow-up across providers.
• Communicate diagnostic results and treatment recommendations during care conferences; assist families with resources.
• Support care transitions across inpatient and outpatient settings.

Job description

Washington University in St. Louis is seeking a Nurse Coordinator to manage care for patients with rare neurologic, genetic, and neurodevelopmental disorders, including Angelman Syndrome, Tuberous Sclerosis Complex, and leukodystrophies.

The role places you as the primary family contact and part of multidisciplinary clinics. You will coordinate care plans, referrals, diagnostic testing, and follow-up across internal and external providers, and support families navigating healthcare, education,