Global Patient Advocacy Director: US Strategy Partnerships

HiTalento TALENTO ApS; Boston, Northern (MA, KY); Hybrid; USD 180,000 - 300,000; Full time

Job summary

Hemab seeks a Senior Director, Global Patient Advocacy Lead to shape patient advocacy strategy with a major focus on the US. You will build partnerships with patient organizations, create advocacy infrastructure, and lead patient advisory boards to feed insights into development decisions.

You will collaborate with clinical teams and go-to-market colleagues to craft patient-facing materials and engagement plans, while ensuring ethical storytelling and broad patient representation across time

Qualifications

• Significant senior-level experience in patient advocacy, community engagement or patient-focused strategy, with evidence shaping strategy as well as delivering it.
• Track record of building relationships with patient organizations and communities.
• Experience building patient communities or advocacy infrastructure in US healthcare and patient advocacy environments.
• Experience creating and leading patient advisory boards and translating patient insight into action.

Responsibilities

• Set Hemab's patient advocacy strategy, with the US as a major focus, deciding where and how we invest to make the greatest difference for the communities we work with.
• Build Hemab's relationships with US patient organizations, patients, families and community leaders, while developing partnerships internationally as needed.
• Build advocacy infrastructure where focused patient organizations don't yet exist, convening communities and supporting emerging groups without speaking on their behalf.
• Develop Hemab's approach to patient advocacy in heavy menstrual bleeding, particularly in the US, leading advisory boards and turning input into development decisions.
• Bring patient perspectives into Asset Teams and partner with clinical and go-to-market colleagues on patient-facing materials and trial engagement.
• Gather and steward patient stories ethically, with consent and dignity over sharing.
• Ensure underserved and geographically dispersed patients have meaningful opportunities to contribute.

Skills

Patient advocacy

Community engagement

Stakeholder relationships

Advisory boards

Ethical patient engagement

Cross-functional collaboration

Travel flexibility

Job description

Location:United States - Boston preferred, or able to spendsignificant timein Boston; hybrid with regular domestic and international travel

AboutHemab

Hemabis building preventative treatments for serious, underserved bleeding disorders. These are therapies designed to work with the body's own biology and stop bleeds before they start, instead of treating them after they happen.We'repatient-first, science-led and clinical-stage-with a pipeline that takes different scientific approaches to different patient needs.

We went public via our 2026 IPO, andwe'rescaling across two homes: Cambridge, MA, USA,and Copenhagen, Denmark.

The role

Patients need a meaningful voice in how medicines are developed and how care changes around them.As SeniorDirector,GlobalPatient Advocacy Lead,you'llset Hemab's patient advocacy strategy, with a major near-term focus on building our presence, partnerships and understanding of patient communities in the US. Across Glanzmann Thrombasthenia, von Willebrand Disease and, increasingly, heavy menstrual bleeding,you'llbuild trusted partnerships where strong communities already exist and help create connections and infrastructure where theydon't.

Our work starts with patients who have spent too long reacting to bleeds rather than having the chance to prevent them. Patient advocacy atHemabisn'tseparate fromthe science- it helps us understand what patients need and what meaningful progress looks like.

Whatyou'lldo

• Set Hemab's patient advocacy strategy, with the US as a major focus, deciding where and how we invest to make the greatest difference for the communities we work with.
• BuildHemab'srelationships with US patient organizations, patients,familiesand community leaders, while developing partnerships internationally as our programs require.
• Build advocacy infrastructure where focused patient organizationsdon'tyet exist,conveningcommunities and supporting emerging groups without speaking on their behalf.
• BuildHemab'sapproach to patient advocacy in heavy menstrual bleeding, particularly in the US, helping an under-recognized community become better connected, heard andunderstood.Designand lead patient advisory boards, turning what you hear into useful input for development strategies and decisions.
• Bring patient perspectives directly into Asset Teams and partner with clinical and go-to-market colleagues on patient-facing materials and trial engagement.
• Gather and steward patient stories ethically, with clear consent,dignityand control over how each person's experience is shared.
• Build representation into our approach so underserved and geographically dispersed patients have meaningful opportunities to contribute.

Whatyou'llbringtoHemab

• Significant senior-level experience in patient advocacy, communityengagementor patient-focused strategy, with evidence thatyou'veshaped strategy as well as delivered it.
• A track recordof building credible, durable relationships with patient organizations and communities.
• Experience building patient communities or advocacy infrastructure from the ground up,particularly in the US healthcare and patient advocacy environment.
• Experience creating and leading patient advisory boards and translating patient insight into action.
• Strong knowledge of ethical patient engagement and storytelling, including consent,dignityandappropriate boundaries.
• Experience partnering across clinical development and other functions to bring patient perspectives into decisions.
• Willingness to travel regularly, including internationally and occasionally for evening or weekend community events.

Nice to have

• Experience in bleeding disorders, rare disease, heavy menstrualbleedingor women's health.
• Experience ina scalingbiotech and across late-stage development,approvaland launch.

What to expect, honestly

Hemabis still building a lot of its own structure.Systems here tend to get created as we need them, not handed down in advance.Whoever takes this role willlikely buildsome of their ownprocessinstead of inheriting a finished one. We work across two hubs and multiple time zones- bridging that well takes real, deliberate effort. And becausewe'regrowing quickly, priorities can shift with less notice than they would at a larger, more established company.

Thisisthe actual shape of working somewhere at this stage:It'sgenuinelyenergisingfor the right person and genuinely frustrating for the wrong one. If you want a place where the operating manual is already written, this might not be it– but if you want to help write it, this might be exactly it.

WhyHemab

AtHemab, your work ultimately connects back to something simple. People living with serious bleeding disorders get somethingthey'venever had before-the chance to prevent a bleed,instead of reacting to one after it happens.You'llbe joining at a stage where individual decisions still carry real weight, and where your work can help turn promising science into a preventative treatment thatactually reachespatients.

How we treat our people is meant to be an extension of how we think about patients: with care, honesty, and respect.We'restill building the consistency toback thatup across every hiring process, every time.We'dsay that plainly instead of pretending otherwise. If any part of your experience with us falls short of it, tell us.

Hemabbuilds balanced candidate slates and assesses everyone against a single standard. If you need a reasonable adjustment at any stage of the hiring process, please tell us.

HemabTherapeutics is proud to be an equal opportunity employer,seekingto create a welcoming and diverse environment. All applicants will receive consideration for employment without regard to race, color, religion, creed, gender, national origin, age, disability, veteran status, pregnancy, sex, marital status, gender expression or identity, genetic information, sexual orientation, citizenship, or any other legally protected class.

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Senior Director, Global Patient Advocacy Lead