Director, Strategic Alliances and Advocacy

Gh Gruppe; Washington (District of Columbia); Remote; USD 202,000 - 250,000; Full time

Job summary

Join a forward-thinking company dedicated to making a real impact in the rare disease sector. As the Director of Strategic Alliances and Advocacy, you'll spearhead initiatives that influence policy and regulatory frameworks, ensuring that patients receive the attention and resources they deserve. Collaborating with diverse internal teams, you will create and manage advocacy campaigns while building valuable relationships with stakeholders. This role is perfect for someone passionate about patient advocacy and eager to contribute to meaningful changes in the healthcare landscape. If you are ready to take your career to the next level and drive real change, this opportunity is for you.

Benefits

Generous vacation time

Long-term incentive plans

Employee stock purchase plans

Fitness reimbursement

Qualifications

• 8+ years of industry experience with strong external engagement.
• Proven ability to build and manage advocacy materials and campaigns.

Responsibilities

• Develop strategic alliances and advocacy campaigns to support US policy.
• Lead Patient Advocacy material development and engagement strategies.

Skills

Excellent communication skills

Interpersonal skills

Strategic alliance development

Patient advocacy experience

Project management

Job description

Director, Strategic Alliances and Advocacy

Washington, D.C. - Remote

Why Join Us?

Be a hero for our rare disease patients

At Ultragenyx, we fundamentally believe that taking real impactful action to care for the needs of patients and our people is always the right thing to do. To achieve this goal, our vision is to lead the future of rare disease medicine. For us, this means going where other biopharma companies won’t go – challenging the status quo and creating a new model that advances our field so more patients and caregivers can benefit from life-changing treatments. We do this by following the science, applying a novel rapid development approach, making innovative medicines at fair and reasonable prices, and creating a collaborative ecosystem to reach patients in ways that are most meaningful for them.

Our commitment and care for patients extends to our people, so culture is an essential cornerstone for Ultragenyx. We remain continuously focused on creating a supportive and inclusive environment of profound learning and growth – so employees can thrive in all areas of their lives, in and outside of work. Ultimately, we want to be an organization where we would be proud for our family, friends and children to work.

If you want to have a meaningful impact, do the best work of your career, and grow a lot, both professionally and personally, come join our team.

Position Summary:

ultraimpact – Make a difference for those who need it most

Reporting to Vice President, Patient Advocacy, the Director, Strategic Alliances & Advocacy, will be responsible for building strategic alliances and advocacy campaigns and initiatives to support US policy, regulatory, commercial, and R&D priorities of Ultragenyx as part of Corporate Affairs. The incumbent will also lead Patient Advocacy material development, including the advocacy website, newsletter, and corporate materials. Finally, the incumbent will be responsible for patient advocacy engagement and strategy for 1-2 Programs in early-stage development. The Director will collaborate with a number of internal stakeholders including Corporate Communications, Policy & Government Affairs, the Program Teams, Legal / Compliance / Regulatory, Medical Affairs, Clinical Operations & Development, and Commercial / Brand Strategy. The Director should be located in the Boston or Washington, DC areas with the expectation to be in the Somerville, MA office on a regular basis.

Work Model:

Remote: Officially documented as working full-time from home, with travel to Ultragenyx's offices or other locations on occasion as needed.

Responsibilities:

• Develop strategic alliances in coordination with US Policy & Government Affairs and other internal teams to support public affairs strategies aligned with business objectives.
• Recruit and cultivate a well-developed network in the rare and ultrarare community that provides access to key stakeholders, critical intelligence, and ability to address future policy and regulatory challenges.
• Engage and educate advocacy leaders as well as rare and ultra-rare grass-tops leaders on Ultragenyx policy and regulatory priorities.
• Represent Ultragenyx at key alliance engagements and stakeholder meetings in Washington, DC and across US as necessary.
• Lead development and management of Patient Advocacy assets, including newsletter, recruitment campaigns, website, community letters, corporate brochures and materials, internal / external patient storytelling, and partnership opportunities.
• Support the Corporate Communications plan by elevating engagement with advocacy organizations across multiple channels and ensuring tight alignment / awareness of Patient Advocacy calendar with internal teams.
• Develop innovative ways of engaging patient and external stakeholder communities across platforms, including through activation and grass-tops campaigns.
• Develop and execute global patient advocacy strategy across different stages of asset development in key markets for Ultragenyx.
• Build trustful relationships with patient advocacy groups and community leaders to ensure productive partnerships and alliance.
• Build and maintain Patient Advocacy annual plan for specific programs and budget in alignment with cross-functional colleagues.

Requirements:

• 8+ years of industry experience and 5+ years of external engagement experience.
• Excellent communications skills (including written and oral) and strong interpersonal skills that can build and progress relationships internally as well as externally.
• Demonstrated experience building communications materials and ensuring appropriate Legal, Compliance, and Regulatory reviews.
• Experience developing and managing annualized patient advocacy plans and budgets.
• Solid understanding of drug development, regulatory, and commercial processes at a global level.
• Experience developing and executing alliance and public affairs campaigns supportive of corporate objectives.
• Experience building corporate / advocacy materials and taking them through appropriate review processes.
• Ability to work in a fast-paced environment, prioritize tasks, and successfully manage multiple projects in a matrixed organization.
• Experience in rare disease preferred.
• Boston or Washington, DC – based.

The typical annual salary range for this full-time position is listed below. This range reflects the characteristics of the job, such as required skills and qualifications and is based on the office location noted in this job posting. The range may also be adjusted based on applicant's geographic location.

This position is eligible for annual bonus and equity incentives. Actual individual pay is determined by demonstrated experience and internal equity alignment.

Pay Range: $202,400 - $250,000 USD

Full Time employees across the globe enjoy a range of benefits, including, but not limited to:

• Generous vacation time and public holidays observed by the company.
• Long term incentive and Employee stock purchase plans or equivalent offerings.
• Fitness reimbursement.

* Benefits vary by region and country.

Ultragenyx Pharmaceutical is an equal opportunity employer and prohibits unlawful discrimination based on race, color, religion, gender, sexual orientation, gender identity/expression, national origin/ancestry, age, disability, marital and veteran status, and any other status or classification protected by applicable federal, state, and/or local laws. Reasonable accommodation will be provided for all protected statuses or classifications protected by applicable law, including individuals with disabilities, disabled veterans, for pregnancy, childbirth, and related medical conditions, and based on sincerely held religious beliefs. Applicants can request an accommodation prior to accepting a job offer. If you require reasonable accommodation in completing this application, or in any part of the recruitment process, you may contact Talent Acquisition by emailing us at [e-mail].